What's New?
 

I had thought that I would switch these newsletters to another service which would be easier and cheaper.  Unfortunately, it didn't work out that way.

Fortunately, I saved the old mailing list in case this new service didn't work out.

If you got two copies of today's newsletter, then you need do nothing.  In the future you will get only one mail again.

If you only got one copy today and it says "You're OK" here, you need do nothing.

I'm very sorry for any convenience this may have caused.

If it appears that the entire newsletter is not here, or you prefer to read the HTML version of this newsletter on the Internet, it is available here: http://www.cushingsonline.com/newsletters/10-4-2006.htm.

To make sure you continue to receive Cushing's e-mail in your inbox (and that it is not sent to bulk or junk folders), please add CushingsSupport@aol.com to your address book.

Thank you for your support!

---

In this issue:

Add your Helpful Hints for Dealing with Cushing's to the website and the Newsletters.
New!  Fun Games to play online.

Website donation status
Order the CUSH Cookbook
News Items
Newest site features: bios, Helpful Doctors
US Postage Stamps for Cushing's Awareness
Order Cushing's Awareness Silicone Bands for yourself, a family member or donate to a Cushing's patient at NIH
Upcoming Meetings: ENDO 2007.
More info below.

---

	. List of donors
	. Donate
	. Donations pay for...

CUSH Cookbooks are here!

The CUSH Cookbooks are only $10.00 each including shipping and handling.

Any profits will go to help bring awareness for Cushings. Thank you!

The cookbooks have about 169 recipes, so it isn't a huge cookbook, but one that includes contributions from many Cushing's message board members.

To purchase a cookbook send a check to:
CUSH
PO Box 1843
Florence, AL.
35631-1843
please indicate on your check "Cookbook" or include a note with payment.

You can also purchase cookbooks through Paypal. Please indicate that the payment is for "cookbook."

 

Be sure that your correct mailing address is included with payment along with a contact phone number in case we have questions concerning your order.

If anyone has any questions concerning cookbook payments please contact CUSH Treasurer Cathy Gifford at CUSHOrg@aol.com

---

News Items: News articles are accessible through the Cushing's Help and Support Message Boards.

Adrenal:

Boy recovering from rare disease
Read the article here  »

Cushing's disease depletes potassium
Read the article here  »

---

Pituitary:

British Opera singer Russell Watson is "in good spirits" after an emergency operation to remove a brain tumour.
Read the article here  »

October Readers Digest Features Story on Cushing's
Read the article here  »

Jaimie's In the News Again: Obese from Secret Disease
Read the article here  »

Lee Memorial Health System is working in cooperation with WBBH NBC-2 to put together a feature on Cushing's Disease for local broadcast.
Read the article here  »

The Cover Shot TV program gave a new look to a Cushie woman who had thoracic and brain surgery. Sat 09/16/06
Read the article here  »

---

Meds:

Genentech Drug Gets New Warnings
Read the article here  »

Complementary Approaches and Alternative Medicine Guide
Read the article here  »

Licorice Root has properties similar to cortisone and estrogen. It stimulates the adrenal glands and may help the body cope with stress.
Read the article here  »

---

Testing:

Salivary Cortisol Response to Prednisolone Challenge Helps Understand Treatment-Resistant Depression: Presented at ECNP. September 19, 2006
Read the article here  »

Salivary Midnight Cortisol, Salivary Range
The loss of a normal diurnal cortisol rhythm is a hallmark of Cushing’s syndrome (11, 12). We show here that a single midnight salivary cortisol level above 2.0 ng/ml (5.52 nmol/liter) gives a sensitivity of 100% and a specificity of 96% for the diagnosis of Cushing’s syndrome. This cut-off value was chosen to obtain the best sensitivity with reliable high specificity.
Read the article here  »

 

---

New Feature! Add your Helpful Hints for Dealing with Cushing's to the website and the Newsletters.

Newest Bios:
To add or edit your bio, click here
Adrenal Patients
Bruce	Bruce has Conn's Syndrome
Deborah (Debs)	Deborah had a double laparoscopic adrenalectomy in June 2004.  She still continues to face challenges & would like to speak with others.	Ontario, Canada
Dixie (DixieT)	Dixie had a pituitary tumor causing an overactive pituitary gland. The conclusion was that removing the adrenal glands would be much easier to take out than removing the pituitary gland. She had two surgeries, one in 1986 and one in 1987. She now has chronic adrenal insufficiency. She has also had her parathyroid removed.	Watkins, CO
Elaine (Elaine3758)	Elaine had an MRI and a CAT scan and was found to have a 2cm tumor on her adrenal gland but her doctor said not to worry and check it again in 3 months.	Arizona
Sandie R	Sandie R had adrenal surgery. She added a picture to her bio November, 2004. Sandie updated her bio September 14th 2006 after her second reconstructive operation. She had a tummy tuck in December 05 and now they have just done a circumfral lipectomy. Her adrenal gland woke up in Jan 05 and her cortisol level has been fine. Sandie's bio has been translated into Hungarian.	Devon, England
Not Yet Diagnosed Patients
Cheryl (Canders)	Cheryl is trying to find a diagnosis and treatment for her many symptoms. She has been diagnosed with hypothyroidism and Interstitial Cystitis.	San Jose, CA
Erica (Erica)	Erica is not yet diagnosed but has many symptoms of Cushing's. She asks people to email her if they have any help for her.	Michigan
Mary Ruth (mrsb91986)	Mary Ruth has updated her bio.  A new doctor things that her problems may be adrenal related. She is currently debating about going to Oregon to the OHSU to See Dr. Ludlam. He seems to think that she may have Intermittent Cushings.	Schodack, NY
Michelle (fixitmich)	Michelle is not yet diagnosed but has many symptoms of Cushing's. So far she has a diagnosis of Pseudo-Cushing's. She is comforted by reading some of the other stories and bios here.	Holiday, FL
Paula R	Paula has had a 24hr urine analysis done, which came back normal, then a few weeks later the dexamethasone test done, low dose 1mg at 11pm, blood taken at 9am next morning. Her endocrinologist said the cortisol levels were low but this is normal. She is getting frustrated as she has many symptoms of Cushing's.	Ireland
Raquel (Roxie)	Raquel has developed many Cushing's symptoms after her pregnancy	Kansas City, Mo
Rebecca (rebecca1969)	Rebecca's mom was just diagnosed with Cushings syndrome but doesn't yet know the type.	New Jersey
Sarah	Although her endocrinologist things Sarah has cyclical Cushing's and she has a 4mm pituitary tumor, she is not diagnosed. She has been sick for a little over three years.	Eugene, OR
Sue (sue)	Sue has been diagnosed with hypothyroid, agioedemia uticaria, heart disease, seizure disorder, multiple sclerosis but not Cushing's.	Colorado
Pituitary Patients
Chantal (Chantal)	Chantal was just diagnosed in August 2006 at the NIH.  She will have surgery Nov. 8th performed by Dr. Oldfield.	Seattle, WA
Debra (Debbie Buffo)	Debra had pituitary surgery in 1992 and did not recover. She also has an adrenal tumor which hasn't changed in size since 1995	Versailles, IN
Dixie (DixieT)	Dixie had a pituitary tumor causing an overactive pituitary gland. The conclusion was that removing the adrenal glands would be much easier to take out than removing the pituitary gland. She had two surgeries, one in 1986 and one in 1987. She now has chronic adrenal insufficiency.  She has also had her parathyroid removed.	Watkins, CO
Heather (heather_suite)	Heather is from Pennsylvania. She had pituitary surgery on January 18, 2006 after years of medical problems.	Pennsylvania
Kathy (KC)	Kathy was diagnosed with an ACTH Pituitary tumor (2 x 2 CM) in December of 2006 and had surgery March 22, 2006.
Kayla (Kayla)	Kayla had Transsphenoidal Surgery on Sept 6, 2006.	Massachusetts
Marina	Marina had pituitary surgery November 14, 2005.	Cape Town, South Africa
Martha (marthatays)	Martha has had stereotactic radiotherapy.	Antioch, CA
Richelle (Richelle)	Richelle had a prolactinoma pituitary tumor removed three years ago.  She takes daily growth hormone injections.	Texas
Theresa (terry.t)	Theresa has empty sella syndrome. The cavity where her pituitary gland is located has been crushed flat.	Connecticut
To add or edit your bio, click here
Newest Helpful Doctors:
To add your helpful doctor, click here

---

• If you've been diagnosed with Cushing's, please participate in the Cushing's Register »

The information you provide will be used to create a register and will be shared with the medical world. It would not be used for other purposes without your expressed permission. Note: This information will not be sold or shared with other companies.

Lynne Clemens, President of CUSH Org is be the person responsible for the creation of this register.  You do not have to be a member of CUSH to fill out this questionnaire, as long as you are a Cushing’s patient. We do not believe that the world has an accurate accounting of Cushing’s patients. The only way to authenticate accuracy is with actual numbers. Your help will be appreciated. Thank you.

June 2-5, 2007, ENDO 2007, Toronto, Canada, Metro Toronto Center. More info as it becomes available.

More upcoming local meetings are listed here »

I hope to see you tonight!

^©2000-2006 Cushing's Help and Support. All rights reserved.
Privacy Policy
Disclaimer