To read the HTML version of this newsletter, or the archives, on the Internet, please click here.
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Important! Please read the chat directions below, so you're ONLY in the Cushing's Room, not both Cushing's and Power Surge. Many people end up being in both rooms, instead of only one.
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| Birthdays: | Other Celebrations: |
barnhillb, January 28
ajaugust1, January 28
smokescreen, January 31
Delusion, February 2
JacobMN, February 3
Donna Iverson, February 4
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Ron and pat@wtp, anniversary (32 years in 2004), January 30
Emilie is expecting.
Jayne and Robin had a baby boy, Brian, on December 15! Congratulations! See their picture.
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| Upcoming Surgery: | Currently Recovering: |
Izzy, Pituitary Surgery, January 28, Dr. Oldfield at NIH
Please post your upcoming surgery here.
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Pituitary:
Darlindebe
bunnieb
SallyC, Sammycat427 (Tracey)
Sally2 (Susan Matthews)
Yasmin
Denise (radtravler)
Kammie
Cathy Tia
Terry
David Williams (acromegaly)
Stayce
AllenS |
Adrenal:
ajaugust1 (Amanda)
Donna
Terry
djo
Sandie
Cassie Handy
Carla
Gus
Anita (inkognita)
Lori (summerlori)
Cat
LadyDi
Duncan
KimB
CJ (Christine) |
Radiation:
Cameron, Fractionated Stereotactic Radiation
Dori, second gamma knife at UVA
SandieK, gamma knife at Ohio State
Melinda Freels, Fractionated Stereotactic Radiation |
Other Surgery:
KathyT, Total Thyroidectomydcrosley
(Diana), Hysterectomy
Blair (Crazyfrenchgrrl), knee
mel24 (Melissa), lap-band surgery
Kelly S, Gastric Bypass Surgery
Doreen, Cataract Surgery
Ria, Removal of Thyroid due to Thyroid Cancer |
| News! |
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There are now 1962 members on the Message Boards.
We welcome your articles, letters to the editor, bios and Cushing's information. Submit a Story or Article to either the snailmail CUSH Newsletter or to an upcoming email newsletter at http://www.cushings-help.com/newsletter_story.htm A no-obligation free sample of the CUSH Organization Newsletter is also available from that same link.
The Transcript of the Special Guest Chat with Dr. Ted Friedman can be found here »
In The Media:
Cushing's is Front Page News in Oregon! More info here »
Sharm's Woman's Day article goes to print in February for the March issue. She was recently on Montel. More info here »
Cherri S' recent pituitary surgery at Vanderbilt was taped by the Learning Channel, airing TBA. More info here »
| Newest Bios: |
| To add or edit your bio, please click here » |
| Damon |
Damon has ectopic Cushing's due to a 8x4x5 cm mass on his left lung. He had a thoracotomy December 18, 2003. |
Kansas City, MO |
| Jaqueline Bookwalter |
Updated: picture added |
Bogotα, Columbia |
| Jill |
Jill is not yet diagnosed, but may have Cyclic Cushing's. |
Massachusetts |
| Josephine |
Updated: Josephine had adrenal Cushing's and also had a tumor in her left lung. She had surgery in November and December 2003 and everything went well. |
Denmark |
| Marg Ruttan (Maggie2) |
Maggie thinks she's probably had (pituitary) Cushing's for at least 27 years. |
Alberta, Canada |
| Pat Gurnick |
Pat had a Pituitary Tumor (Cushing's Disease), Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS), Fibromyalgia, and Environmental Illness/Multiple Chemical Sensitivities. |
Valencia, California (close to Los Angeles area) |
| Sam |
Sam was born with Cyclical Adrenal Cushing's. |
Snohomish, Washington |
| Tiffany |
Tiffany is not yet diagnosed. |
Northern Indiana |
| T.K. |
T.K.'s sister battled for over 10 years to get a correct Cushing's diagnosis and finally had her pit tumor removed in 2001. |
Gulf Coast of Mississippi |
| Tracie Tyson |
Tracie diagnosed herself with (adrenal) Cushing's. |
Upper Gullies, Newfoundland, Canada |
If you've been diagnosed with Cushing's, please participate in the Cushing's Register » The information you provide will be used to create a register and will be shared with the medical world. It would not be used for other purposes without your expressed permission. Note: This information will not be sold or shared with other companies.Lynne Clemens, Secretary of CUSH Org is be the person responsible for the creation of this register. If you have any questions you may contact her at lynnemc@attbi.com. You do not have to be a member of CUSH to fill out this questionnaire, as long as you are a Cushings patient. We do not believe that the world has an accurate accounting of Cushings patients. The only way to authenticate accuracy is with actual numbers. Your help will be appreciated. Thank you."
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| Fundraising: |
CUSH can always use funds to help us all, by spreading the word and helping others. What can *you* do to help CUSH?
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| Upcoming Conventions, Meetings and Seminars: |
 Friday and Saturday, April 1-3,
2004.
Pituitary Days Convention. CUSH will be meeting, also. More information next week, including the brochure and sign-up forms.
April 28-May 2, 2004, Boston, American Association of Clinical Endocrinologists (AACE) Meeting
More info here »
June 16-19, 2004 New Orleans, Endo2004.
More info here »
CUSH is proud to announce the Convention for October, 2004 in Nashville, TN.:
Friday, October 22, 2004 Dr. Lewis S. Blevins will be the keynote speaker of the 2004 CUSH Convention in Nashville, TN. Dr. Scott Issacs will also be a speaker.
More info here ».
More upcoming local meetings are listed here »
Sign up for notification of local meetings. You need not be a CUSH member to participate. |
| Online Chats: |
| Please join us in the Chat Room (click here, and then continue on to TheCushingsChat. See directions below.) The next scheduled chat is TONIGHT at 9 PM, Eastern. Important! People who do not have Java on their browsers may use another version of the chatroom. Please be sure to continue on to TheCushingsChat. While you're in the Power Surge room, click on the black "X" at the top of the room (Not the X in the blue circle) This will put you in the area where you can see all the rooms listed. You'll see the one to the list that says TheCushingsChat. Double click on that name to get into the room. If you do have menopause issues, be sure to return on Thursday nights at 9 eastern for wonderful information, guest speakers and camaraderie.
Directions: When you enter the Chat Room (http://sites.chatspace.com:8350/):
1 Enter a nickname for yourself (it would help everyone if you use the same name you use to post...but it's not necessary). NO Password is required. Your password from the boards will not work, unless you register it after you are in the chatroom. More features are available when you are registered, but it is entirely optional. If your chosen name doesn't work, it means that someone else has registered it. Pick another name and try again. You may also choose a font size at the sign-in window, under "Options". 2 Push the "LOGIN button"
You will be in my friend's Power Surge Chat Room. 3 On the top, left side, you will see a tab that says "Rooms". Click on that and there will be a list which includes the TheCushingsChat. Click on the name to get in. I hope to see you tonight! 
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Cushing's Help and Support at http://www.cushings-help.com
Cushing's Message Boards at http://www.cushings-support.com/cgi-bin/ib3/ikonboard.cgi
Subscribe and Unsubscribe: Cushing's Newsletters and Chat Reminders http://www.cushings-help.com/aim.htm#reminder
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