To read the HTML version of this newsletter, or the archives, on the Internet, please click here.
|
Important! Please read the chat directions below, so you're ONLY in the Cushing's Room, not both Cushing's and Power Surge. Many people end up being in both rooms, instead of only one.
Power Surge Live!
Invites You Join Us
Thursday, January 8th
Weight Gain? Anxiety? Fatigue? Hair Loss? Depression?
It Could Be Hypothyroidism!
Join
KENNETH BLANCHARD, M.D., Ph.D.
Author of
What Your Doctor May Not Tell You About Hypothyroidism:
A Simple Plan for Extraordinary Results  KENNETH BLANCHARD, M.D., Ph.D.
Dr. Kenneth Blanchard is an endocrinologist and
author of the new book,
What Your Doctor May Not Tell You About Hypothyroidism:
A Simple Plan for Extraordinary Results.
Depression, fatigue, headaches, memory lapses,
weight gain, constipation, cold intolerance,
slowed reflexes, hair loss, menstrual abnormalities -
these are some of the vague, sometimes
debilitating symptoms that, in varying
combinations, plague more than 13 million patients
with hypothyroidism.
Unfortunately, many patients with hypothyroidism
go for months to years, from doctor to doctor,
from test to tests without being properly diagnosed.
This is because the TSH blood test,
considered the gold standard for diagnosis,
is simply not an accurate indicator of hypothryoidism.
Perhaps more perplexing, millions who are properly diagnosed
find themselves undergoing often ineffective
treatments for their disorder.
At last, there is a solution:
Dr. Blanchard's groundbreaking treatment program
draws on emerging research, medical facts,
and three decades of clinical experiences
as an endocrinologist.
It's an individualized program that uses questionnaires
and charts to help diagnose sufferers through symptoms,
not lab results- and treats patients of all ages
with the safe, but little used, T3 hormone
in the best combination with the more common T4 hormone,
as well as with specific nutritional advice
and alternative treatments that really work!
FIVE LUCKY PEOPLE
AT THE CHAT WILL WIN
FREE COPIES OF Dr. Blanchard's Book
Meet
KENNETH BLANCHARD, M.D., Ph.D.
Thursday, January 8th
9 PM (ET), 6 PM (PT) Enter The Power Surge Guest Chat Remember, you can find the guest
transcripts of chats you've missed in the
Library 3-4 days after the chat.
|
| Birthdays: | Other Celebrations: |
Epiphaneee, January 9
LeeAnn, January 11
Daphne, January 12
AnnaD, January 12
Suzanne P, January 13
arlene, January 14
|
Sharmyn, was on the Montel Show, January 6th
Emilie is expecting.
Jayne and Robin had a baby boy, Brian, on December 15! Congratulations!
Lynne Clemens, Right adrenalectomy anniversary (2001)
Mat and Sandie Roughley will renew their marriage vows this year.
|
| Upcoming Surgery: | Currently Recovering: |
KathyT, Total Thyroidectomy, Jan 21, Dr. Randolph at Mass. Eye and Ear
Please post your upcoming surgery here.
|
Pituitary:
Darlindebe
bunnieb
SallyC, Sammycat427 (Tracey)
Sally2 (Susan Matthews)
Yasmin
Denise (radtravler)
Kammie
Cathy Tia
Terry
David Williams (acromegaly)
Stayce
AllenS |
Adrenal:
Donna
Terry
djo
Sandie
Cassie Handy
Carla
Gus
Anita (inkognita)
Lori (summerlori)
Cat
LadyDi
Duncan
KimB
CJ (Christine)
SteveB |
Radiation:
Cameron, Fractionated Stereotactic Radiation
Dori, second gamma knife at UVA
SandieK, gamma knife at Ohio State
Melinda Freels, Fractionated Stereotactic Radiation |
Other Surgery:
dcrosley (Diana), Hysterectomy
Blair (Crazyfrenchgrrl), knee
mel24 (Melissa), lap-band surgery
Kelly S, Gastric Bypass Surgery
Doreen, Cataract Surgery
Ria, Removal of Thyroid due to Thyroid Cancer |
| News! |
|
There are now 1901 members on the Message Boards. Gina in Alabama is member number 1900!
We welcome your articles, letters to the editor, bios and Cushing's information. Submit a Story or Article to either the snailmail CUSH Newsletter or to an upcoming email newsletter at http://www.cushings-help.com/newsletter_story.htm A no-obligation free sample of the CUSH Organization Newsletter is also available from that same link.
The Transcript of the Special Guest Chat with Dr. Ted Friedman can be found here »
In The Media:
MaryO was interviewed by PBS Voices of Vision at the Philadelphia Endocrine Convention. Also featured: Dr. Mary Lee Vance, Dr. James Findling, a patient having a PSS (Petrosal Sinus Sampling). Airing within the first two weeks in January, 2004. A phone call or email to your local PBS station could be helpful in ensuring that your station carries this special program. With the potential of reaching 90 million viewers in the US, this is a huge step towards increasing public awareness.
From Voices of Vision, a company that makes
documentaries for PBS:
211 Hope for a
Cure:
Fighting Cushings Syndrome
Its relatively rare, but better diagnostic methods
are making Cushings Syndrome more visible to the
general public. A debilitating disease that causes the overproduction of
cortisol, the substance that regulates blood pressure,
and the metabolism of proteins, carbohydrates and fats, Cushings has no known
cure and treatment is often complicated and risky. The doctors at St. Lukes
Medical Center in Milwaukee are some of the few who are working to bring
better diagnosis and treatment to those afflicted by this condition.
More info here »
Sharm Sharm was interviewed for the Montel show. It aired yesterday, January 6. Read what people are saying about the show. She was also was interviewed for the NY Post. They printed a Cushings article. More info here »
Cherri S' recent pituitary surgery at Vanderbilt was taped by the Learning Channel, airing TBA. More info here »
| Newest Bios: |
| To add or edit your bio, please click here » |
| Adrienne |
Adrienne has steroid induced Cushing's due to kidney failure. |
Southern Oregon |
| Carla Constant |
Updated: Adrenal Surgery October 7th, 2003 |
The Pas, Manitoba |
| Darren Shore |
Updated: Pictures added
successful transsphenoidal surgery January of 2003 |
Montreal, Canada |
| David Sherwell |
David is not yet diagnosed |
Adelaide, Australia |
| Diane Nyberg |
Updated: Diane has adrenal Cushing's and a thyroid Medullary Carcinoma |
Saint Charles, Missouri |
| Donna L |
Donna has cyclical adrenal Cushing's |
San Francisco CA |
| Leah Tirol-Magno |
Leah has a .8 cm adrenal tumor on my left adrenal gland (cortex) |
Bohol, Philippines |
| Liberty |
Possibly a co-secreting tumor secreting prolactin and cortisol |
Highland, CA |
| Mary |
19 years old and had surgery for a Rathke's Cleft Cyst (Pituitary) two years ago. |
Virginia |
| Mary T |
Mary has had two pituitary surgeries, BLA and High Frequency Radio Wave Oblation |
Southern CA |
| Sabrina |
Diagnosed so far with PCOS and diabetes |
Arkansas |
| Sarah Pett-Noble |
Not Yet Diagnosed |
Lincolnshire, UK |
| Sophie |
Not Yet Diagnosed |
Adelaide, Australia |
| Susan C |
Not Yet Diagnosed |
Shreveport, LA |
If you've been diagnosed with Cushing's, please participate in the Cushing's Register » The information you provide will be used to create a register and will be shared with the medical world. It would not be used for other purposes without your expressed permission. Note: This information will not be sold or shared with other companies.Lynne Clemens, Secretary of CUSH Org is be the person responsible for the creation of this register. If you have any questions you may contact her at lynnemc@attbi.com. You do not have to be a member of CUSH to fill out this questionnaire, as long as you are a Cushings patient. We do not believe that the world has an accurate accounting of Cushings patients. The only way to authenticate accuracy is with actual numbers. Your help will be appreciated. Thank you."
|
| Fundraising: |
- Burden Bears:
- Natalie has been collecting some money for CUSH.
She says: "I am making "Burden Bears" and selling them at my craft shows and I am donating $1 from each sale... ...So far I have collected about $20 for us."
Thanks to all of you for these clever Fundraising ideas.
CUSH can always use funds to help us all, by spreading the word and helping others. What can *you* do to help CUSH?
|
| Upcoming Conventions, Meetings and Seminars: |
 Friday and Saturday, April 1-3,
2004.
Pituitary Days Convention. CUSH will be meeting, also. More information next week, including the brochure and sign-up forms.
April 28-May 2, 2004, Boston, American Association of Clinical Endocrinologists (AACE) Meeting
More info here »
June 16-19, 2004 New Orleans, Endo2004.
More info here »
CUSH is proud to announce the Convention for October, 2004 in Nashville, TN.:
Friday, October 22, 2004 Dr. Lewis S. Blevins will be the keynote speaker of the 2004 CUSH Convention in Nashville, TN.
More info here ».
Tentative Atlanta area meeting. Carol Perkins, former model - Victoria's Secret, Harper's Bazaar, Vogue, and the founder of Harry Barker in Savannah - has agreed to share her inspiring story. More information, as it becomes available, or check here »
More upcoming local meetings are listed here »
Sign up for notification of local meetings. You need not be a CUSH member to participate. |
| Online Chats: |
| Please join us in the Chat Room (click here, and then continue on to TheCushingsChat. See directions below.) The next scheduled chat is TONIGHT at 9 PM, Eastern. Important! People who do not have Java on their browsers may use another version of the chatroom. Please be sure to continue on to TheCushingsChat. While you're in the Power Surge room, click on the black "X" at the top of the room (Not the X in the blue circle) This will put you in the area where you can see all the rooms listed. You'll see the one to the list that says TheCushingsChat. Double click on that name to get into the room. If you do have menopause issues, be sure to return on Thursday nights at 9 eastern for wonderful information, guest speakers and camaraderie.
Directions: When you enter the Chat Room (http://sites.chatspace.com:8350/):
1 Enter a nickname for yourself (it would help everyone if you use the same name you use to post...but it's not necessary). NO Password is required. Your password from the boards will not work, unless you register it after you are in the chatroom. More features are available when you are registered, but it is entirely optional. If your chosen name doesn't work, it means that someone else has registered it. Pick another name and try again. You may also choose a font size at the sign-in window, under "Options". 2 Push the "LOGIN button"
You will be in my friend's Power Surge Chat Room. 3 On the top, left side, you will see a tab that says "Rooms". Click on that and there will be a list which includes the TheCushingsChat. Click on the name to get in. I hope to see you tonight! 
~~~~~~~~~~~
Cushing's Help and Support at http://www.cushings-help.com
Cushing's Message Boards at http://www.cushings-support.com/cgi-bin/ib3/ikonboard.cgi
Subscribe and Unsubscribe: Cushing's Newsletters and Chat Reminders http://www.cushings-help.com/aim.htm#reminder
| |
|
