What's New?

October 13, 2003

To read the HTML version of this newsletter, or the archives, on the Internet, please click here.

In This Issue:HappeningsSite News MeetingsChat Info


Please read the chat directions below, so you're ONLY in the Cushing's Room, not both Cushing's and Power Surge. Many people end up being in both rooms, instead of only one.

Barbara "Cookie" Rothenberg
Saturday, Oct 11, 2003

The One and Only Cookie,
photo taken by Erin
Columbus CUSH meeting, Saturday, October 26, 2002

There will be a Memorial Chat for Cookie
Monday night, October 13, at 10 PM
click here for the chatroom

From the posts on the message boards:

My heartfelt prayers and sympathy goes out to Cookie's family, I never really had gotten to know Cookie Like many of you, but during a few chats, I saw how she helped many, answering questions, ect... and always willing to help out. My heart is sad to hear of her passing.

What I learned from Cookie was that she loved people and wanted to make a difference in the lives of those who suffer from Cushing's. She touched many hearts, I know she touched mine....

Cookie was an inspiration to many of us. She gave her all for Cushing's awareness, and I will always remember that the last time I saw her, she was singing...
Shalom, my friend.

Rest in peace, Dear Cookie. I know that right now you're organizing angels into working teams who will get heaven straightened out, with fun and laughter all the way. I guess G-d needs you now more than we do.

We'll miss you so much, Sweetie.

I was lucky to have gotten to meet Cookie. She is such a fun person and she could always cheer you up.

Cookie, gees, what can you say. She was dynamic, committed, determined, exasperating, poetic, driven, electric, comedic, funny, supportive, strong, loving, loved, and not to repeat, but a driving force in creating CUSH and helping those who needed it. She was wonderful with fundraising. She was involved in so many activies that were for the benefit of others. She has dealt with many challenges in her life and continued to passed the point that many could not.

She will be sorely missed by all who knew and knew of her.

She was just an incredible, delightful person. I really think this world is a little dimmer today without her light from within. I know a lot of us are missing her already. I remember talking to her about the upcoming conference and her enthuisiasm was contagious. I'm just so very, very sorry to hear she's passed. I hope her next life is one without pain, where she can sing and write poems to her heart's content. Cooke will be sorely missed.

My family and I met Cookie at the UVA Cushings Conference Fall 2002. She was so helpful and caring. She told my father, sister, and I her "Cushings Story." She was so, well, there is no better word to describe her, "bubbly." She was so happy to be there, teaching, learning, and helping with CUSH. She left an impression on my family and I. She had such a great personality. She was one of the very first "Cushies" I met...and she made me re-think my attitude about being sick. She was going through so much, yet she had such a wonderful attitude towards it all. She was amazing!

Cookie touched a lot of lives. I remember back on the "old board"--before any of us had met any of the others in real life--I would get these perky, cheerful and witty emails from Cookie. She had a signature that was some kind of rhyme including "Lookie, lookie,...Cookie." Her little dollop of cheer in my "inbox" always made me smile.

It is terrible to lose her. She has left such a legacy, though, that she will go on touching lives for many years to come.

I think this fits Cookie perfectly:

Some People ...
Some people come into our lives and quickly go
Some people move our souls to dance
They awaken us to new understanding
With the passing whisper of their wisdom
Some people make the sky more beautiful
To gaze upon
They stay in our lives for a while
Leave footprints in our hearts ...
And we are never the same

-- Anonymous

In lieu of flowers, Cookie's family has requested that donations be made to the
Cushing’s Understanding Support & Help (CUSH) Organization
PO Box 24748
Lyndhurst, OH 44124

or online, by credit card, here:

CUSH receives 97% of your donation through PayPal.

Next Online Newsletter will be Wednesday, October 22
read archived issues here »
Birthdays:Other Celebrations:
•Cheryle, October 14
•fiffor, October 15
•pincushion, October 18
•mkbrooks, October 18
•GoodIdeaLady (, October 20
•Sooze, October 21
•Jeni, October 22
•Judy, October 22
•ritabodine, October 22
•rita_2, October 22
• Shauna's, spots (nodules) on right lung may be just an infection. Her biopsy was cancelled - the "tumors" are too small!
• The CUSH Convention is this week!
• Jayne and Robin are expecting.
Upcoming Surgery:Currently Recovering:
• Cassie Handy, bi-lateral adrenalectomy for recurrent Cushing's, UCLA, October 13

• Sandie Roughley, Adrenal Surgery, not sure if it's Lap or Open yet, October 13

• SarahsSanity, Pituitary Surgery, Portland, October 13

• Terry, Pituitary Surgery, Cedars Sinai with Dr Shahinian, October 13

• Cathy Tia, Pituitary Surgery, New Zealand, October 15

• djo, Adrenal, October 17

• Kelly S, TBA - November, Gastric Bypass Surgery

• Kammie, Pituitary Surgery, Nov 3, Cedars with Dr Shahinian

• GoodIdeaLady (Tami), 2nd transsphenoidal, Nov 10, OHSU, Portland, OR, Dr. Delashaw (Ludlam as endo)

• Doreen, Cataract Surgery, to be rescheduled

• David Williams (acromegaly)
• Stayce
• AllenS
• Debbs
• Lanita
• Kathie
• Jennifer (jjlr52)
• Gina
Read all about Gina's wonderful helpers »
• Kara
• Lucille
• JudyL
•Anita (inkognita)
•Lori (summerlori)
• KimB
• CJ (Christine)
• SteveB
• Allie
• Sam
• Teri T
• CathyR

• Dori, second gamma knife at UVA
• SandieK, gamma knife at Ohio State
• Melinda Freels, Fractionated Stereotactic Radiation
• Luisa (LSpriggs), gamma knife at UVA
Other Surgery:

• Ria, Removal of Thyroid due to Thyroid Cancer
• Christine, exploratory Endometriosis
• Edith, Fibroid surgery
• Katty, total abdominal hysterectomy

• Lorrie, right ankle broken in three places, her left heel fractured, is completely immobile

• There are now 1735 members on the Message Boards.

• New doctors added to Maryland and Arizona.

• We welcome your articles, letters to the editor, bios and Cushing's information. Submit a Story or Article to either the snailmail CUSH Newsletter or to an upcoming email newsletter at http://www.cushings-help.com/newsletter_story.htm A no-obligation free sample of the CUSH Organization Newsletter is also available from that same link.

• Coming in November, a Special Guest Chat with Dr. Ted Friedman. More info »

In The Media:

• MaryO was interviewed by PBS Voices of Vision at the Philadelphia Endocrine Convention. Also featured: Dr. Mary Lee Vance, Dr. James Findling, a patient having a PSS (Petrosal Sinus Sampling). Airing TBA, October. More info here »

• Sharm Sharm was interviewed for the Montel show. Airing TBA, most likely within 30 days. She was also was interviewed for the NY Post. They printed a Cushing’s article. More info here »

• Cherri S' recent pituitary surgery at Vanderbilt was taped by the Learning Channel, airing TBA. More info here »

• If you've been diagnosed with Cushing's, please participate in the Cushing's Register »

The information you provide will be used to create a register and will be shared with the medical world. It would not be used for other purposes without your expressed permission. Note: This information will not be sold or shared with other companies.

Lynne Clemens, Secretary of CUSH Org is be the person responsible for the creation of this register. If you have any questions you may contact her at lynnemc@attbi.com. You do not have to be a member of CUSH to fill out this questionnaire, as long as you are a Cushing’s patient. We do not believe that the world has an accurate accounting of Cushing’s patients. The only way to authenticate accuracy is with actual numbers. Your help will be appreciated. Thank you."

Burden Bears:
Natalie has been collecting some money for CUSH.

She says: "I am making "Burden Bears" and selling them at my craft shows and I am donating $1 from each sale... ...So far I have collected about $20 for us."

The Cushing's Store
for all kinds of Cushing's Labeled clothing, coffee mugs, totebags and much more. Great for your endo or Secret Someone.
Remember iGive.com...
... all year round.

iGive.com allows online stores to donate a percentage of their profit to running these Cushing's Support sites (the message boards, http://www.cushings-help.com, http://www.CUSH.org, http://www.cushings-support.com and http://www.cushingsonline.com) at no cost to you. So far, members have raised $238.67, and it hasn't cost them a cent.

See the list of participating merchants »

Thank you so much for your support.

Thanks to all of you for these clever Fundraising ideas.

CUSH can always use funds to help us all, by spreading the word and helping others. What can *you* do to help CUSH?

Upcoming Conventions, Meetings and Seminars:
•Upcoming Indianapolis Luncheon, Saturday, November 1st. More info here »

•Upcoming Nashville area Luncheon, Tentative, Saturday, November 8, More info here »

•Upcoming Pittsburgh Luncheon, Saturday, November 15th. Judy is hostess. More info here »

•CUSH is proud to announce the Convention for October, 2003 in Portland, Oregon. More info here » Thanks to everyone - this is going to be one great conference!

• Map to the Convention Site
• Portland Weather

•PDES Seminar on Growth Hormone Replacement, Saturday, Oct 18, Dearborn, MI. More info here »

• Friday and Saturday, April 1-3, 2004. Pituitary Days Convention for Doctors and Patients at UVa, Charlottesville, VA. More information here ». There will be many people from the message boards there. CUSH will have a meeting during this time, as well.

• Tentative Atlanta area meeting. Carol Perkins, former model - Victoria's Secret, Harper's Bazaar, Vogue, and the founder of Harry Barker in Savannah - has agreed to share her inspiring story. More information, as it becomes available, or check here »

• More upcoming local meetings are listed here »

• Sign up for notification of local meetings. You need not be a CUSH member to participate.

Online Chats:
Please join us in the Chat Room (click here, and then continue on to TheCushingsChat. See directions below.)

The next scheduled chat is TONIGHT at 10 PM, Eastern, when we will remember Cookie and all that she has done for us.

Important! The chat room has been updated and will look different to folks who have been around before - there are some new features, and some of the old ones have moved to a new place, so it might take a little getting used to. People who do not have Java on their browsers may use another version of the chatroom.

Please be sure to continue on to TheCushingsChat. While you're in the Power Surge room, click on the black "X" at the top of the room (Not the X in the blue circle) This will put you in the area where you can see all the rooms listed. You'll see the one to the list that says TheCushingsChat. Double click on that name to get into the room.

If you do have menopause issues, be sure to return on Thursday nights at 9 eastern for wonderful information, guest speakers and camaraderie.

Directions: When you enter the Chat Room (http://sites.chatspace.com:8350/):

1 Enter a nickname for yourself (it would help everyone if you use the same name you use to post...but it's not necessary). NO Password is required. Your password from the boards will not work, unless you register it after you are in the chatroom. More features are available when you are registered, but it is entirely optional. If your chosen name doesn't work, it means that someone else has registered it. Pick another name and try again.

You may also choose a font size at the sign-in window, under "Options".

2 Push the "LOGIN button"

You will be in my friend's Power Surge Chat Room.

3 On the top, left side, you will see a tab that says "Rooms". Click on that and there will be a list which includes the TheCushingsChat. Click on the name to get in.

I hope to see you tonight!


Cushing's Help and Support at http://www.cushings-help.com
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