What's New?

October 28, 2003
Happy Halloween!

To read the archives, on the Internet, please click here.

In This Issue:HappeningsSite News MeetingsChat Info

Important!

Please read the chat directions below, so you're ONLY in the Cushing's Room, not both Cushing's and Power Surge. Many people end up being in both rooms, instead of only one.



Power Surge Live! Thursday Guest Chats
October 30th, 9 PM, ET
STEPHEN HOLT, M.D.
Midlife And Syndrome X

Stephen Holt. M.D.

Stephen Holt, M.D., has practiced medicine since 1972. Professor of Medicine, Scientist, Board certified gastroenterologist and internist in the U.S., England and Canada, with higher training in nutrition, clinical pharmacology and medicine of addictions. Most of Dr. Holt's referred patients have been seen by several physicians previously and they often have complex disorders.

Dr. Holt is the author of 12 books including Combat Syndrome X, Y & Z -- Syndrome X, or the metabolic syndrome, is the combination of obesity, high blood cholesterol, high blood pressure and linked by the presence of insulin resistance, and affects up 70 million Americans.

Dr. Holt is also the author of the bestselling Random House book,
The Soy Revolution.

Other books he's authored can be found at www.WellnessPublishing.com.

Five lucky people will win FREE copies of
Dr. Holt's book.

Enter the Chat with Dr. Stephen Holt

PROTOCOL INSTRUCTIONS FOR GUEST CHATS

  • Once the guest is introduced, random chatting is not permitted.
  • If you have a question for our guest, type only
    a question mark - ? - to screen
  • Your name will be placed in a queue and you will
    be called on in turn.
  • Please restrict yourself to one question
    at a time as others are waiting to ask theirs.

    No password is required to join the chat
    Message Board user names and passwords
    do not apply to the chat room



Barbara "Cookie" Rothenberg
Saturday, Oct 11, 2003


The One and Only Cookie,
photo taken by Erin
Columbus CUSH meeting, Saturday, October 26, 2002

Read some of the Memorial Posts on the message boards.



In lieu of flowers, Cookie's family has requested that donations be made to the
Cushing’s Understanding Support & Help (CUSH) Organization
PO Box 24748
Lyndhurst, OH 44124

or online, by credit card, here:


CUSH receives 97% of your donation through PayPal.




Next Online Newsletter will be Wednesday, November 5
read archived issues here »
Birthdays:Other Celebrations:
Edith, October 29
Lis1959, October 30
Melissa (zoozoozpetals), October 30
PJ (Paula), November 2
besteach, November 3
PamelaPeters, November 4
shansalot , November 4
Happy Halloween!
MaryO, Pituitary surgery (transsphenoidal) anniversary (November 3, 1987)
The CUSH Convention was a great success!
Jayne and Robin are expecting.
Upcoming Surgery:Currently Recovering:
Kelly S, TBA - November, Gastric Bypass Surgery

Kammie, Pituitary Surgery, Nov 3, Cedars with Dr Shahinian

GoodIdeaLady (Tami), 2nd transsphenoidal, Nov 10, OHSU, Portland, OR, Dr. Delashaw (Ludlam as endo)

Pituitary:
• Cathy Tia
• Terry
• David Williams (acromegaly)
• Stayce
• AllenS
• Debbs
• Lanita
• Kathie
• Jennifer (jjlr52)
• Gina
Read all about Gina's wonderful helpers »
Adrenal:
•djo
•Sandie
•Cassie Handy
•Carla
•Gus
•Anita (inkognita)
•Lori (summerlori)
•Cat
•LadyDi
•Duncan
• KimB
• CJ (Christine)
• SteveB
Radiation:
Dori, second gamma knife at UVA
SandieK, gamma knife at Ohio State
Melinda Freels, Fractionated Stereotactic Radiation
Luisa (LSpriggs), gamma knife at UVA
Other Surgery:
Doreen, Cataract Surgery
Ria, Removal of Thyroid due to Thyroid Cancer
Other:
Lorrie, right ankle broken in three places, her left heel fractured, is completely immobile
News!

• There are now 1769 members on the Message Boards.

• We welcome your articles, letters to the editor, bios and Cushing's information. Submit a Story or Article to either the snailmail CUSH Newsletter or to an upcoming email newsletter at http://www.cushings-help.com/newsletter_story.htm A no-obligation free sample of the CUSH Organization Newsletter is also available from that same link.

• Coming in November, a Special Guest Chat with Dr. Ted Friedman. More info »



In The Media:

MaryO was interviewed by PBS Voices of Vision at the Philadelphia Endocrine Convention. Also featured: Dr. Mary Lee Vance, Dr. James Findling, a patient having a PSS (Petrosal Sinus Sampling). Airing TBA, October.

From Voices of Vision, a company that makes documentaries for PBS:

211 Hope for a Cure:
Fighting Cushing’s Syndrome

It’s relatively rare, but better diagnostic methods are making Cushing’s Syndrome more visible to the general public. A debilitating disease that causes the overproduction of cortisol, the substance that regulates blood pressure, and the metabolism of proteins, carbohydrates and fats, Cushing’s has no known cure and treatment is often complicated and risky. The doctors at St. Luke’s Medical Center in Milwaukee are some of the few who are working to bring better diagnosis and treatment to those afflicted by this condition.
More info here »

Sharm Sharm was interviewed for the Montel show. Airing TBA, most likely within 30 days. She was also was interviewed for the NY Post. They printed a Cushing’s article. More info here »

Cherri S' recent pituitary surgery at Vanderbilt was taped by the Learning Channel, airing TBA. More info here »

Newest Bios:
To add or edit your bio, please click here »
Barbara Rick Pituitary surgery
August 6, 2003.
Fergus Falls, MN
Cathy Tia Updated
2 weeks post 2nd transsphenoidal
New Zealand
Jean 8mm Pituitary Tumor
removed on May 14th 2003.
Erie, PA
Kelly Brandsen Son is not yet diagnosed Holland, MI
Lila (Kathy) Cox Pituitary surgery Feb, 2000. near Ledbetter, Texas


If you've been diagnosed with Cushing's, please participate in the Cushing's Register »

The information you provide will be used to create a register and will be shared with the medical world. It would not be used for other purposes without your expressed permission. Note: This information will not be sold or shared with other companies.

Lynne Clemens, Secretary of CUSH Org is be the person responsible for the creation of this register. If you have any questions you may contact her at lynnemc@attbi.com. You do not have to be a member of CUSH to fill out this questionnaire, as long as you are a Cushing’s patient. We do not believe that the world has an accurate accounting of Cushing’s patients. The only way to authenticate accuracy is with actual numbers. Your help will be appreciated. Thank you."

Fundraising:
Burden Bears:
Natalie has been collecting some money for CUSH.

She says: "I am making "Burden Bears" and selling them at my craft shows and I am donating $1 from each sale... ...So far I have collected about $20 for us."

The Cushing's Store
for all kinds of Cushing's Labeled clothing, coffee mugs, totebags and much more. Great for your endo or Secret Someone.
Remember iGive.com...
... all year round.

iGive.com allows online stores to donate a percentage of their profit to running these Cushing's Support sites (the message boards, http://www.cushings-help.com, http://www.CUSH.org, http://www.cushings-support.com and http://www.cushingsonline.com) at no cost to you. So far, members have raised $247.14, and it hasn't cost them a cent.

See the list of participating merchants »


Thank you so much for your support.

Thanks to all of you for these clever Fundraising ideas.

CUSH can always use funds to help us all, by spreading the word and helping others. What can *you* do to help CUSH?


Upcoming Conventions, Meetings and Seminars:
Upcoming Indianapolis Luncheon, Tentative, Saturday, November 1st. More info here »

Upcoming Nashville area Luncheon, Saturday, November 8, More info here »

Upcoming Pittsburgh Luncheon, Saturday, November 15th. Judy is hostess. More info here »

CUSH is proud to announce the Convention for October, 2004 in Nashville, TN.

•Pictures from the 2003 CUSH Convention, Portland Oregon:
Friday and Saturday, April 1-3, 2004. Pituitary Days Convention. CUSH will be meeting, also.
April 28-May 2, 2004, Boston, American Association of Clinical Endocrinologists (AACE) Meeting
More info here »
June 16-19, 2004 New Orleans, Endo2004.
More info here »
Friday, October 22, 2004 Dr. Lewis S. Blevins will be the keynote speaker of the 2004 CUSH Convention in Nashville, TN.
More info here ».

Tentative Atlanta area meeting. Carol Perkins, former model - Victoria's Secret, Harper's Bazaar, Vogue, and the founder of Harry Barker in Savannah - has agreed to share her inspiring story. More information, as it becomes available, or check here »

More upcoming local meetings are listed here »

Sign up for notification of local meetings. You need not be a CUSH member to participate.

Online Chats:
Please join us in the Chat Room (click here, and then continue on to TheCushingsChat. See directions below.)

The next scheduled chat is TONIGHT at 10 PM, Eastern, when we will remember Cookie and all that she has done for us.

Important! The chat room has been updated and will look different to folks who have been around before - there are some new features, and some of the old ones have moved to a new place, so it might take a little getting used to. People who do not have Java on their browsers may use another version of the chatroom.

Please be sure to continue on to TheCushingsChat. While you're in the Power Surge room, click on the black "X" at the top of the room (Not the X in the blue circle) This will put you in the area where you can see all the rooms listed. You'll see the one to the list that says TheCushingsChat. Double click on that name to get into the room.

If you do have menopause issues, be sure to return on Thursday nights at 9 eastern for wonderful information, guest speakers and camaraderie.

Directions: When you enter the Chat Room (http://sites.chatspace.com:8350/):

1 Enter a nickname for yourself (it would help everyone if you use the same name you use to post...but it's not necessary). NO Password is required. Your password from the boards will not work, unless you register it after you are in the chatroom. More features are available when you are registered, but it is entirely optional. If your chosen name doesn't work, it means that someone else has registered it. Pick another name and try again.

You may also choose a font size at the sign-in window, under "Options".

2 Push the "LOGIN button"

You will be in my friend's Power Surge Chat Room.

3 On the top, left side, you will see a tab that says "Rooms". Click on that and there will be a list which includes the TheCushingsChat. Click on the name to get in.

I hope to see you tonight!


~~~~~~~~~~~

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