What's New?

November 10, 2003

To read the archives on the Internet, please click here.

In This Issue:HappeningsSite News MeetingsChat Info


Please read the chat directions below, so you're ONLY in the Cushing's Room, not both Cushing's and Power Surge. Many people end up being in both rooms, instead of only one.

The First Ever Cushing's Help Live Guest Chat

Tuesday, November 11, 9 PM (ET)



* * * * * * * * * * * * * * * * * * * *

Theodore C. Friedman, M.D., Ph.D. is in private practice,
specializing in treating patients with Cushing's, adrenal,
pituitary, thyroid and fatigue disorders. His practice includes
detecting and treating hormone imbalances, including hormone
replacement therapy. Dr. Friedman is also an expert in
diagnosing and treating pituitary disorders.

Dr. Friedman's career reflects his ongoing quest to better
understand and treat endocrine problems. With both medical
and research doctoral degrees, he has conducted studies and
cared for patients at some of the country's most prestigious
institutions, including the University of Michigan, the National
Institutes of Health, Cedars-Sinai Medical Center, and UCLA's
Charles Drew University of Medicine and Science.

who will field your questions about
Cushing's, diagnosis and treatment.
Tuesday, November 11, at 9 PM (ET) in
Continue on the to Cushing's Room

This will be a Protocol Chat.


Once the guest is introduced, random chatting is not permitted.

If you have a question for our guest, type only
a question mark - ? - to screen

Your name will be placed in a queue and you will
be called on in turn.

Please restrict yourself to one question
at a time as others are waiting to ask theirs.

No password is required to join the chat.
Message Board user names and passwords
do NOT apply to the chat room.

Next Online Newsletter will be Wednesday, November 12
read archived issues here »
Birthdays:Other Celebrations:
hormonallychallenged, November 10
arjay, November 11
The Cushing's Message Boards went over 1800 members this week. Not bad for a "rare disease"!
The CUSH Convention was a great success!
Jayne and Robin are expecting.
Upcoming Surgery:Currently Recovering:
Kelly S, TBA - November, Gastric Bypass Surgery

Cameron, Cameron starts 6 weeks of continuous radiation, November 10.

GoodIdeaLady (Tami), 2nd transsphenoidal, Nov 10, OHSU, Portland, OR, Dr. Delashaw (Ludlam as endo)

Denise (radtravler), Nov. 20, at Vanderbilt with Dr Allen

Sally2, pituitary surgery, tentatively December 8.

Sammycat427 (Tracey), pituitary surgery, December 12

• Kammie
• Cathy Tia
• Terry
• David Williams (acromegaly)
• Stayce
• AllenS
• Debbs
• Lanita
• Kathie
• Jennifer (jjlr52)
• Gina
Read all about Gina's wonderful helpers »
•Cassie Handy
•Anita (inkognita)
•Lori (summerlori)
• KimB
• CJ (Christine)
• SteveB
Dori, second gamma knife at UVA
SandieK, gamma knife at Ohio State
Melinda Freels, Fractionated Stereotactic Radiation
Luisa (LSpriggs), gamma knife at UVA
Other Surgery:
Doreen, Cataract Surgery
Ria, Removal of Thyroid due to Thyroid Cancer
Lorrie, right ankle broken in three places, her left heel fractured, is completely immobile

• There are now 1805 members on the Message Boards. Asma was the 1,800th member.

• We welcome your articles, letters to the editor, bios and Cushing's information. Submit a Story or Article to either the snailmail CUSH Newsletter or to an upcoming email newsletter at A no-obligation free sample of the CUSH Organization Newsletter is also available from that same link.

• Coming tomorrow, November 11, a Special Guest Chat with Dr. Ted Friedman. More info »

In The Media:

MaryO was interviewed by PBS Voices of Vision at the Philadelphia Endocrine Convention. Also featured: Dr. Mary Lee Vance, Dr. James Findling, a patient having a PSS (Petrosal Sinus Sampling). Airing TBA, October.

From Voices of Vision, a company that makes documentaries for PBS:

211 Hope for a Cure:
Fighting Cushing’s Syndrome

It’s relatively rare, but better diagnostic methods are making Cushing’s Syndrome more visible to the general public. A debilitating disease that causes the overproduction of cortisol, the substance that regulates blood pressure, and the metabolism of proteins, carbohydrates and fats, Cushing’s has no known cure and treatment is often complicated and risky. The doctors at St. Luke’s Medical Center in Milwaukee are some of the few who are working to bring better diagnosis and treatment to those afflicted by this condition.
More info here »

Sharm Sharm was interviewed for the Montel show. Airing TBA, most likely within 30 days. She was also was interviewed for the NY Post. They printed a Cushing’s article. More info here »

Cherri S' recent pituitary surgery at Vanderbilt was taped by the Learning Channel, airing TBA. More info here »

Newest Bios:
To add or edit your bio, please click here »
Andrea Katherine Anthony aka Izzy Updated
Testing continuing to locate the pit tumor.
Woodside. NY
Cameron Cook Updated
Pituitary Tumor could not be totally removed.
Monday (Nov 10, 2003) she starts 6 weeks straight of radiation.
Welland, Ontario, Canada
Carla Constant Updated
Adrenal Surgery
October 7th, 2003
The Pas, Manitoba
Irwin Not yet diagnosed. Palm Bay, FL
Jacquié Pituitary
Transsphenoidal, Oct. 17, 2003
Watson, Louisiana, a small town just east of Baton Rouge
Jinxie Updated
Pictures added
Jinxie had Cyclic Cushing's, Acromegaly, pituitary surgery and a Bilateral Adrenalectomy (BLA).
Holland, MI
Kathleen Adrenal tumor. Eagle, Idaho
Lisa J Not yet diagnosed Weymouth, MA
Tricia Francis Pituitary surgery August 2003. Mason City, Illinois

If you've been diagnosed with Cushing's, please participate in the Cushing's Register »

The information you provide will be used to create a register and will be shared with the medical world. It would not be used for other purposes without your expressed permission. Note: This information will not be sold or shared with other companies.

Lynne Clemens, Secretary of CUSH Org is be the person responsible for the creation of this register. If you have any questions you may contact her at You do not have to be a member of CUSH to fill out this questionnaire, as long as you are a Cushing’s patient. We do not believe that the world has an accurate accounting of Cushing’s patients. The only way to authenticate accuracy is with actual numbers. Your help will be appreciated. Thank you."

Burden Bears:
Natalie has been collecting some money for CUSH.

She says: "I am making "Burden Bears" and selling them at my craft shows and I am donating $1 from each sale... ...So far I have collected about $20 for us."

The Cushing's Store
for all kinds of Cushing's Labeled clothing, coffee mugs, totebags and much more. Great for your endo or Secret Someone.
... all year round. allows online stores to donate a percentage of their profit to running these Cushing's Support sites (the message boards,,, and at no cost to you. So far, members have raised $255.58, and it hasn't cost them a cent.

See the list of participating merchants »

Thank you so much for your support.

Thanks to all of you for these clever Fundraising ideas.

CUSH can always use funds to help us all, by spreading the word and helping others. What can *you* do to help CUSH?

Upcoming Conventions, Meetings and Seminars:
Upcoming Pittsburgh Luncheon, Saturday, November 15th. Judy is hostess. More info here »

CUSH is proud to announce the Convention for October, 2004 in Nashville, TN.

•Pictures from the 2003 CUSH Convention, Portland Oregon:
Friday and Saturday, April 1-3, 2004. Pituitary Days Convention. CUSH will be meeting, also.
April 28-May 2, 2004, Boston, American Association of Clinical Endocrinologists (AACE) Meeting
More info here »
June 16-19, 2004 New Orleans, Endo2004.
More info here »
Friday, October 22, 2004 Dr. Lewis S. Blevins will be the keynote speaker of the 2004 CUSH Convention in Nashville, TN.
More info here ».

Tentative Atlanta area meeting. Carol Perkins, former model - Victoria's Secret, Harper's Bazaar, Vogue, and the founder of Harry Barker in Savannah - has agreed to share her inspiring story. More information, as it becomes available, or check here »

More upcoming local meetings are listed here »

Sign up for notification of local meetings. You need not be a CUSH member to participate.

Online Chats:
Please join us in the Chat Room (click here, and then continue on to TheCushingsChat. See directions below.)

The next scheduled chat is Wednesday at 9 PM, Eastern.

Important! People who do not have Java on their browsers may use another version of the chatroom.

Please be sure to continue on to TheCushingsChat. While you're in the Power Surge room, click on the black "X" at the top of the room (Not the X in the blue circle) This will put you in the area where you can see all the rooms listed. You'll see the one to the list that says TheCushingsChat. Double click on that name to get into the room.

If you do have menopause issues, be sure to return on Thursday nights at 9 eastern for wonderful information, guest speakers and camaraderie.

Directions: When you enter the Chat Room (

1 Enter a nickname for yourself (it would help everyone if you use the same name you use to post...but it's not necessary). NO Password is required. Your password from the boards will not work, unless you register it after you are in the chatroom. More features are available when you are registered, but it is entirely optional. If your chosen name doesn't work, it means that someone else has registered it. Pick another name and try again.

You may also choose a font size at the sign-in window, under "Options".

2 Push the "LOGIN button"

You will be in my friend's Power Surge Chat Room.

3 On the top, left side, you will see a tab that says "Rooms". Click on that and there will be a list which includes the TheCushingsChat. Click on the name to get in.

I hope to see you tonight!


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