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TO THIS EMAIL Contact info is near bottom of
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Thank you for
your support!
Pictures from the
recent Nashville, TN lunch.
US Postage
Stamps for Cushing's Awareness
Order
Cushing's Awareness Silicone
Bands for yourself, a family
member or donate to a Cushing's
patient at NIH
Submit your recipes
for a CUSH Cookbook
Endonasal
(pituitary) surgery
Transphenoidal (pituitary) surgery
Upcoming Meetings in
Tennessee and Washington, DC metro area
Read all
about them below.
|
| News! |
Picture from the October 29, 2005
Nashville, TN Cushing's Lunch.
Cathy,
Sue (SuziQ), Susan,
Mamma, Diana and Sharm
Submit your recipes for a CUSH
Cookbook!
It's
time to gather up your favorite
recipes, the ones you'd like to
share with others, and send them to
Cheryl Farrar for entry in our
cookbook, CUSH Cuisine.
For questions or comments, please
visit this topic on the message
boards:
http://cushings.invisionzone.com/index.php?
showtopic=13732&pid=112309&st=0#entry112309
Cheryl's Address is:
Cheryl Farrar
2725 Cambridge Ct.
Oklahoma City, OK 73116
You can also email to her at:
cheryl1957ann@sbcglobal.net
The link to the form for the recipes
is:
Recipe Collection or fill out
the info below.
Please note: We are allowed 2
lines with 35 characters each so
we'd like to publish everyone's
board names along with their real
names and state or country.
Thanks!
(Please type or print clearly and
proofread before you send it to
Cheryl)
Category: 1. Appetizers/Beverages
2. Soups/Salads
3. Veggies & Side dishes
4. Main Dishes
5. Breads/Rolls
6. Desserts
7. Cookies & Candy
8. This & That
Category: ______________________
Recipe Title:__________________
Submitted by: _________________
phone # _______________________
State/country__________________
e-mail _______________________
Ingredients: (Use abbreviations: pt.
qt. pkg. env. c. tsp. T. oz. lb.
gal. doz sm. med. lg.)
________________________________________
________________________________________
________________________________________
________________________________________
Directions:______________________________
_________________________________________
_________________________________________
_________________________________________
_________________________________________
_________________________________________
_________________________________________
Up to 10 recipes per person please,
all recipes may not be used if we
receive several of same type.
We
are going to try to have recipes
submitted by Nov 1st, if at all
possible so that we can get them
typed and to the publisher by mid
January to get the best
discounts....but it all depends on
you! |
Use the new US Postage Stamps to
promote Cushing's Awareness,
available in August in the
Cushing's Store. Use these stamps
for mailing your congress people about
Cushing's Awareness, or for sending
cheery cards to other patients, or just
to get the word out. $2.00 of each
purchase will go the the running of the
message boards and the rest of the
websites.
The stamps come in sheets of 20. This
Custom Postage cannot be purchased or
shipped outside the U.S.
More info on the Message Boards »
Cushing's
Awareness Silicone Bands.
I want to thank the people who
generously contributed so that NIH
visitors could get Cushie wrist bands.
In addition to the
awareness bands, each bag
includes a CUSH brochure,
my own brochure (the same
as I send out with the
regular awareness bands),
and a Cushings-Help
business card.
Each of the brochures includes the
name of the person who
donated the bands, so
that the patients will
know that there's another
patient out there who did
this for them.
Thanks again - you made
several Cushies smile! More
information here.
Order here.
| News: |
We
welcome your articles,
letters to the editor,
bios and Cushing's
information.
Submit a Story or Article
to either the snailmail
CUSH Newsletter or to an
upcoming email newsletter
at http://www.cushings-help.com/newsletter_story.htm Note:
These articles are
provided in furtherance
of the mission of
Cushing's Help and
Support to help people
with Cushing's or other
endocrine problems, their
friends and families
through research,
education, support, and
advocacy. These news
items are intended to
serve as background
concerning its subject
for patient-physician
discussions and
discussions among Cushing's
Help and Support Message
Board
Members.
These
articles contain
information by authors
and publishers that is
subject to the Copyright
Act of 1976, and
"fair use
doctrine" therein,
effective on January 1,
1978 (17 U.S.C. § 101 et
seq.). Cushing's Help and
Support makes no
representation that the
information and any of
the views or comments
contained in these
articles are completely
accurate or current.
Cushing's Help and
Support takes no
responsibility for any of
the content.
|
|
Horses with Cushing's! |
How is it possible that horses with
Cushing's get more studies than
people?
From:
http://www.thehorse.com/viewarticle.aspx?ID=3154
|
AAEP
Convention Topics Preview: General
Medicine |
|
by: The Horse
Staff |
Treatment of Cushing's Syndrome
More
horses are living into their 20s and
30s, and keeping these older horses
healthy can require special
management. However, sometimes despite
the best care, an older horse might
become afflicted with Cushing's
syndrome. A result of pituitary pars
intermedia (intermediate lobe of the
pituitary) dysfunction, Cushing's
syndrome is generally characterized by
a heavy, coarse, wavy coat that fails
to shed in the summer, excessive
thirst and urination, a swaybacked or
potbellied appearance, increased
appetite, loss of muscle over the
topline, and a compromised immune
system. Blood tests sometimes detect
high blood sugar and fats, anemia,
reduced lymphocyte counts, and
electrolyte problems.
In
his presentation during the General
Medicine Program on Nov. 25, Harold
Schott, DVM, PhD, will present "The
Michigan Cushing's Project." He will
discuss the subtleties of the disease
and recent research completed by
Michigan State University comparing
two current treatments.
Michigan State University began a
study in 1997 involving Schott, Cindy
Coursen, DVM, a private practitioner
in Pottersville, Mich., other Michigan
private practitioners, and Michigan
State staff. Their goal was to
determine whether cyproheptadine or
pergolide is the most effective
treatment for Cushing's.
Cyproheptadine is a serotonin blocker
in tablet form used for years to treat
Cushing's, while pergolide mesylate is
a dopamine agonist (activator) that
also has been a well-accepted
treatment option for Cushing's for
many years. Previously there was no
information available about which
treatment was the most effective.
The
results of the study give
veterinarians and horse owners more
information needed to choose treatment
options for the horse with Cushing's.
|
Transsphenoidal
Pituitary Surgery |
from: |
• If you've been
diagnosed with Cushing's,
please participate in the
Cushing's
Register »
The
information you provide
will be used to create a
register and will be
shared with the medical
world. It would not be
used for other purposes
without your expressed
permission. Note:
This information will not
be sold or shared with
other companies.
Lynne
Clemens, Secretary of CUSH
Org is be the
person responsible for
the creation of this
register. If you have any
questions you may contact
her at lynnecush@comcast.net. You do
not have to be a member
of CUSH to fill out this
questionnaire, as long as
you are a Cushing’s
patient. We do not
believe that the world
has an accurate
accounting of
Cushing’s patients.
The only way to
authenticate accuracy is
with actual numbers. Your
help will be appreciated.
Thank you."
|
| Fundraising: |
|
CUSH can always use
funds to help us all, by
spreading the word and helping
others. What can *you* do to help
CUSH?
|
| Upcoming
Conventions, Meetings and
Seminars: |
|
November 2005, Washington DC Metro Area,
Third Thursdays,
More info here »
December 17, 2005, San
Francisco, CA,
More info here »
June
24-27, 2006, ENDO 2006, Boston Convention &
Exhibit Center. More info as it becomes
available.
June 2-5, 2007,
ENDO 2007,
Toronto, Canada, Metro Toronto Center.
More info as it becomes available.
More
upcoming local meetings are
listed here »
Sign up
for notification of
local meetings. You need not be
a CUSH member to participate.
|
| Online Chats: |
| Please
join us in the Chat Room
TONIGHT at 9 PM Eastern. The chatroom
is available through http://www.cushings-help.com/chatroom.htm.
The very first
time you go in, you will have to
register for this chat. Although
you may use your user name and
password from the message boards,
you will still need to register
those before being allowed into
the room.
This room is
always open, and has convenient
links so that you can get needed
information while you're
chatting.
I hope to see you
tonight!
~~~~~~~~~~~
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