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| Important! Please read the chat directions below, so you're ONLY in the Cushing's Room, not both Cushing's and Power Surge. Many people end up being in both rooms, instead of only one.
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| Birthdays: | Other Celebrations: |
(HandiMan's Mom) Nancy, February 19
McCall, February 20
j9gril, February 21
Pangela, February 22 |
Washington's Birthday, February 22 |
| Upcoming Surgery: | Currently Recovering: |
Melinda Freels, started Fractionated Stereotactic Radiation, February 18, St. Joseph's Hospital in Atlanta. This will be daily over a 6 week period.
Angela Kaiser, BLA, Feb 19, Dr. Voellinger, Presbyterian Hospital, Charlotte NC
Dee (deleciab), Pituitary surgery, February 20, with Dr. Turner in Albuquerque, NM
Duncan (Karen), Pituitary Surgery, probably the week of February 24
Jaime, Pituitary surgery at UVa, March 10
Jinxie, Pituitary surgery in CA, March 12
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Pituitary
Cherri in AL
Linda P. (tinydogpries)
BrendaC
Darren Shore
Erin
Libby
Judy
Cookie
Miri
Jenny
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Adrenal
Melinda 2
Deborah's son, Curtis, from a second adrenal surgery
Suzanne
Debbie
Kathie Mcconnell (kamaroon)
Denise
Lora
Julye
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Other
Sean S, Ectopic, thymus removed
Jennifer (Jennifurlii), Sleep Apnea
Dori, gamma knife at UVA
Cookie had a pacemaker installed November 4, and another pituitary surgery December 3.
She then returned to the hospital, in Florida, after another incident. Now, she is in the hospital in Ohio with congestive heart failure and anemia. She just started dialysis and had skin biopsies and is waiting for results. Monday night, 2/10 her heart stopped beating and she stopped breathing. She had a heart attack and will be on permanent dialysis now.
Please send much needed prayers!
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| News! |
| The newest board is Post-OP Over 2 years? Still not really well?, suggested by Christine Bartol. She suggested this board for those of us who are surgery oldtimers, whose numbers say we're "cured" but still aren't feeling completely well.
Sign up for notification of local meetings. You need not be a CUSH member to participate.
The newest UVa Convention pictures are from LynnInVa. See them at Lynn's Convention Pictures
There are now 1260 members on the Message Boards
We welcome your articles, letters to the editor, bios and Cushing's information. Submit a Story or Article to either the snailmail CUSH Newsletter or to an upcoming email newsletter at http://www.cushings-help.com/newsletter_story.htm A no-obligation free sample of the CUSH Organization Newsletter is also available from that same link.
A list of Current CUSH Organization members is available here.
| Newest Bios: |
| To add or edit your bio, please click here. |
| j9gril (Janine) |
No diagnosis yet. |
Melbourne, Australia |
| Liz Jamieson |
No diagnosis yet. |
New Zealand |
| SeanS |
Ectopic Cushing's Syndrome.
thymus gland removed
January 29, 2003 |
Portland, Oregon |
| Tim Ross |
No diagnosis yet. |
Amsterdam, the Netherlands |
If you've been diagnosed with Cushing's, please participate in the Cushing's Register The information you provide will be used to create a register and will be shared with the medical world. It would not be used for other purposes without your expressed permission. Note: This information will not be sold or shared with other companies.Lynne Clemens, Secretary of CUSH Org is be the person responsible for the creation of this register. If you have any questions you may contact her at lynnemc@attbi.com. You do not have to be a member of CUSH to fill out this questionnaire, as long as you are a Cushings patient. We do not believe that the world has an accurate accounting of Cushings patients. The only way to authenticate accuracy is with actual numbers. Your help will be appreciated. Thank you."
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| Fundraising: |
- Decorative Candles:
- Julia (Spencer's Mom) is beginning to make food oriented candles - shaped like sundaes, pies, and other desserts. She will donate 20% of the proceeds to CUSH and she's even trying to making a candle in the shape of the CUSH pin!
Watch for more infomation about this new CUSH Fundraiser.
- Cape Cod Candles:
  Lynn in Va Cushieinvirginia@msn.com) has an idea for a CUSH fundraiser. Her friend Sherri has been a Party-Lite Candle consultant for many years. The candles have several different scents/colors to choose from: Cinnamon Stick (Brown), Raspberry/Thyme (raspberry), Mulberry (Mulberry), Ocean Mist (Royal Blue), Bayberry (Sage), Lime/Cilantro (light sage), Honeydew (Mint), Pear / Basil (Yellow), Vanilla (Ivory). There is an optional lid and a platter to go underneath.
These would make terrific Secret Someone gifts and you'd be helping CUSH out at the same time!
The candles are all pure Cape Cod candles. The total cost is 15.00 per candle including shipping/handling. Sherri has offered us her commission, $3.00 for each candle that is sold, to go to our CUSH Organization.
For an order form, please email Cushieinvirginia@msn.com or download here in Excel format.
Please send checks with orders to:
Sherri Blakeman
7808 Knollwood Street
Brandywine, MD 20613
You may also email orders to Sherriblakeman@comcast.net and mail the checks to her.
Many thanks to Lynn and Sherri!
- Burden Bears:
- Natalie has been collecting some money for CUSH.
She says: "I am making "Burden Bears" and selling them at my craft shows and I am donating $1 from each sale... ...So far I have collected about $20 for us."
| In the Cushing's Store... |
... Great News! Using a special coupon code, you can receive $5 off your purchase from the Cushing's Store when you spend $40* (not including shipping, tax and gift services) or more. This offer started February 17, 2003 and expires February 28, 2003. View all the products here: Cushing's Store
Enter coupon code, PREZDAY, at checkout to redeem.
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| Remember iGive.com... |
... all year round.
iGive.com allows online stores to donate a percentage of their profit to running these Cushing's Support sites at no cost to you. So far, members have raised $225.01, and it hasn't cost them a cent.
Through April 30th, iGive.com is giving away FREE $5 donations for each new member who joins iGive & shops within 45 days!
See the list of participating merchants.
Thank you so much for your support! |
Thanks to all of you for these clever Fundraising ideas.
CUSH can always use funds to help us all, by spreading the word and helping others. What can *you* do to help CUSH?
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| Upcoming Local Meetings: |
Shauna has been busy setting this up...CUSH is proud to announce that we are planning a meeting for October of 2003 in beautiful Portland, Oregon.
We have arranged to have Dr. David Cook of Oregon Health Sciences University speak to our group. Dr. Cook is an Cushing's expert and we are honored to have him speak.
We've added another speaker (thanks Cookie!), a neurosurgeon who works with Dr. Cook's patients. His name is Dr. Johnny Deleshaw, and he's the one who performed Kelly and Emilie's surgeries.
We are also arranging to have additional speakers, including (hopefully) a neuropsychologist and a gynecologist, to help us with all that goes with Cushing's Syndrome.
We are tentatively looking at booking our rooms at the Embassy Suites, Portland Airport location. The cost for a single room suite is $109, about $130 after taxes. Your room will include a breakfast. The rooms are very nice and spacious. We will have both smoking and non-smoking available.
The dates will be: October 16, 17 and 18th, with departure on the 19th. Our schedule will be as follows:
Thursday: General meeting of CUSH, one hour CUSH officers meeting, evening cocktail hour.
Friday: Conference with our speakers and a catered lunch, courtesy of CUSH. Dinner out that night (we'll provide selections).
Saturday: FUN!! We're looking at either a boat ride down the Columbia Gorge or possibly at train ride down the Gorge.
Sunday: Hugs, tears and goodbyes
There will be a small charge (donation, tax deductible) to attend the conference, but we are sure it will be worth every cent. Many of us are putting in lots of work to make this an unforgettable, yearly event. We will invite you to tell your doctors about this - YOU NEED NOT BE A MEMBER OF CUSH TO ATTEND. We will have materials available for you to post and give your doctor to promote this event. It will be very professional and we will have some fun events planned.
Here's what we need from you before we sign a contract:
If you would like to attend please let us know if you'd be willing and able to book a room. Remember, you can always share a room. We will be committed to 20 rooms per night, and need to fill all rooms.
If you're in the local Portland area and want to attend, but not take a room, please let us know.
We are setting a date after which attendance will be restricted. Tentatively, we are looking at until June for Conference attendance and July as the last time to book a room. All of this is subject to change, as we're still ironing out details.
Please let us know ASAP if you believe you can attend and if you'll need a room. Also, if you can indicate if you believe this is 100% firm, that would be great. We will be signing a binding contract that could cost CUSH more money than we have if people don't show up. We're trying to avoid that by getting your thoughts and attendance.
Thanks to everyone - this is going to be one great conference!
Friday and Saturday, April 1-3, 2004. Pituitary Days Convention for Doctors and Patients at UVa, Charlottesville, VA. More information here. There will be many people from the message boards there. CUSH will have a meeting during this time, as well.
New pictures in the Photo Gallery from the last CUSH meeting in Columbus, Ohio. Erin took these: http://www.cushings-help.com/photo_gallery.htm Pictures from this year's convention are available in the Photo Gallery, http://www.cushings-help.com/photo_gallery.htm Pictures from last year's convention are available at http://www.cushingsonline.com/Convention1.htm
Tentative Atlanta area meeting. Carol Perkins, former model - Victoria's Secret, Harper's Bazaar, Vogue, and the founder of Harry Barker in Savannah - has agreed to share her inspiring story. More information, as it becomes available, or check here
More upcoming local meetings are listed here.
To list other local meetings, please send an email.
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| New Book: |
 Hormonal
Balance: Understanding Hormones, Weight, and Your Metabolism
by
Scott Isaacs,
Todd Leopold (Contributor),
Neil B. Shulman
Book Description
Hormonal
Balance profiles each hormone system in clear terms, discussing what
can go wrong and how imbalances can affect weight and even perpetuate
obesity. By explaining how to reverse symptoms of hormonal imbalance
through diet changes and other remedies, readers learn to recognize
and respond to hormone imbalances in everything from menstrual cycles
to diabetes.
Dr. Isaacs is
Melinda Freels Endo. Melinda
writes: "I want to give my endo's new book a plug. He doesn't know I'm
doing this. Dr. Isaacs is the best endo I've seen, (and I've seen at
least a dozen in the Atlanta area) plus he really knows his stuff.
Anyway, Hormonal Balance is very well written, in easy-to-understand
language. It covers a variety of hormonal diseases, including
Cushing's, PCOS, Androgen disorders, insulin resistance, thyroid,
growth hormone deficiency, etc."
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| Online Chats: |
| Please join us in the Chat Room (click here, and then continue on to TheCushingsChat. See directions below.) The next scheduled chat is TONIGHT at 9 PM, Eastern, when we will discuss Cushing's, troubles with diagnosis, symptoms and much more. Important! The chat room has been updated and will look different to folks who have been around before - there are some new features, and some of the old ones have moved to a new place, so it might take a little getting used to. People who do not have Java on their browsers may use another version of the chatroom. Please be sure to continue on to TheCushingsChat. While you're in the Power Surge room, click on the black "X" at the top of the room (Not the X in the blue circle) This will put you in the area where you can see all the rooms listed. You'll see the one to the list that says TheCushingsChat. Double click on that name to get into the room. If you do have menopause issues, be sure to return on Thursday nights at 9 eastern for wonderful information, guest speakers and camaraderie. Not sure how these times relate to where you are? Here's a Time Zone Converter Directions: When you enter the Chat Room (http://sites.chatspace.com:8350/):
1 Enter a nickname for yourself (it would help everyone if you use the same name you use to post...but it's not necessary). NO Password is required. Your password from the boards will not work, unless you register it after you are in the chatroom. More features are available when you are registered, but it is entirely optional. If your chosen name doesn't work, it means that someone else has registered it. Pick another name and try again. You may also choose a font size at the sign-in window, under "Options". 2 Push the "LOGIN button"
You will be in my friend's Power Surge Chat Room. 3 On the top, left side, you will see a tab that says "Rooms". Click on that and there will be a list which includes the TheCushingsChat. Click on the name to get in. I hope to see you tonight! 
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