What's New?

March 1, 2004

To read the archives, please click here.

In This Issue:HappeningsSite News MeetingsChat Info

Important!

Please read the chat directions below, so you're ONLY in the Cushing's Room, not both Cushing's and Power Surge. Many people end up being in both rooms, instead of only one.



The Second Cushing's Help Live Guest Chat
http://sites.chatspace.com:8350/

Tuesday, March 2, 9 PM (ET)

UNDERSTANDING and DIAGNOSING CUSHING'S

With
THEODORE FRIEDMAN, M.D., Ph.D.

* * * * * * * * * * * * * * * * * * * *

Theodore C. Friedman, M.D., Ph.D. is in private practice,
specializing in treating patients with Cushing's, adrenal,
pituitary, thyroid and fatigue disorders. His practice includes
detecting and treating hormone imbalances, including hormone
replacement therapy. Dr. Friedman is also an expert in
diagnosing and treating pituitary disorders.

Dr. Friedman's career reflects his ongoing quest to better
understand and treat endocrine problems. With both medical
and research doctoral degrees, he has conducted studies and
cared for patients at some of the country's most prestigious
institutions, including the University of Michigan, the National
Institutes of Health, Cedars-Sinai Medical Center, and UCLA's
Charles Drew University of Medicine and Science.


Join DR. THEODORE FRIEDMAN
who will field your questions about
Cushing's, diagnosis and treatment.
Tuesday, March 2, at 9 PM (ET) in
http://sites.chatspace.com:8350/
Continue on the to Cushing's Room



This will be a Protocol Chat.

PROTOCOL INSTRUCTIONS FOR GUEST CHATS

Once the guest is introduced, random chatting is not permitted.

If you have a question for our guest, type only
a question mark - ? - to screen

Your name will be placed in a queue and you will
be called on in turn.

Please restrict yourself to one question
at a time as others are waiting to ask theirs.

No password is required to join the chat.
Message Board user names and passwords
do NOT apply to the chat room.




Next Online Newsletter will be Wednesday, March 10
read archived issues here »
News!

• There are now 2058 members on the Message Boards. SURVIVOR was the 2,000th member.

• We welcome your articles, letters to the editor, bios and Cushing's information. Submit a Story or Article to either the snailmail CUSH Newsletter or to an upcoming email newsletter at http://www.cushings-help.com/newsletter_story.htm A no-obligation free sample of the CUSH Organization Newsletter is also available from that same link.

• Coming tomorrow, March 2, a Special Guest Chat with Dr. Ted Friedman. More info »



Newest Bios:
To add or edit your bio, please click here »
Anonymous Male diagnosed with a tumor on his pituitary, January 2004.  
Cathy Tia Updated
Cathy had the left side of her pituitary gland removed and a BLA
She was asked to go on a morning talk show televised across New Zealand.
Wellington, Zealand
Jenn's Mom Jenn was 23 year old when she was diagnosed in May of 2003 with Cushing's caused by a tumor on her right adrenal gland. She had an adrenalectomy in July, 2003 South Eastern Massachusetts - Surgery was at Brigham & Women's in Boston.
Jennifer Schutte (JenS) Jennifer had pituitary tumor found around 1993. She is cyclical and hasn't had surgery yet. Nutley, NJ
Marielle Pituitary
Marielle has had a recurrence
Queens, New York
Merilee Merilee has a pituitary tumor and was originally misdiagnosised with Prolactinoma. Stayton, Oregon
Nancy Heineke Nancy Heineke had a transphenoidal addenomectomy in June 2003. Cleveland, Ohio
Neesa Not yet diagnosed Gloucester, MA
Rachel Pituitary, still waiting for surgery East Yorkshire, England
Tracie Tyson Updated
Adrenal, pictures added
Newfoundland, Canada
Trisha Shrader Not yet diagnosed Greencastle, Indiana


If you've been diagnosed with Cushing's, please participate in the Cushing's Register »

The information you provide will be used to create a register and will be shared with the medical world. It would not be used for other purposes without your expressed permission. Note: This information will not be sold or shared with other companies.

Lynne Clemens, Secretary of CUSH Org is be the person responsible for the creation of this register. If you have any questions you may contact her at lynnemc@attbi.com. You do not have to be a member of CUSH to fill out this questionnaire, as long as you are a Cushing’s patient. We do not believe that the world has an accurate accounting of Cushing’s patients. The only way to authenticate accuracy is with actual numbers. Your help will be appreciated. Thank you."

Fundraising:
Burden Bears:
Natalie has been collecting some money for CUSH.

She says: "I am making "Burden Bears" and selling them at my craft shows and I am donating $1 from each sale... ...So far I have collected about $20 for us."

The Cushing's Store
for all kinds of Cushing's Labeled clothing, coffee mugs, totebags and much more. Great for your endo or Secret Someone.
Remember iGive.com...
... all year round.

iGive.com allows online stores to donate a percentage of their profit to running these Cushing's Support sites (the message boards, http://www.cushings-help.com, http://www.CUSH.org, http://www.cushings-support.com and http://www.cushingsonline.com) at no cost to you. So far, members have raised $291.31, and it hasn't cost them a cent.

See the list of participating merchants »


Thank you so much for your support.

Thanks to all of you for these clever Fundraising ideas.

CUSH can always use funds to help us all, by spreading the word and helping others. What can *you* do to help CUSH?


Upcoming Conventions, Meetings and Seminars:


CUSH is proud to announce the Convention for October, 2004 in Nashville, TN.

•Pictures from the 2003 CUSH Convention, Portland Oregon:
Friday and Saturday, April 1-3, 2004. UVa Pituitary Days Convention. CUSH will be meeting, also.
April 28-May 2, 2004, Boston, American Association of Clinical Endocrinologists (AACE) Meeting
More info here »
June 16-19, 2004 New Orleans, Endo2004.
More info here »
Friday, October 22, 2004 Dr. Lewis S. Blevins will be the keynote speaker of the 2004 CUSH Convention in Nashville, TN. Dr. Scott Issacs and Sharmyn McGraw will also be speaking.
More info here ».

More upcoming local meetings are listed here »

Sign up for notification of local meetings. You need not be a CUSH member to participate.

Online Chats:
Please join us in the Chat Room (click here, and then continue on to TheCushingsChat. See directions below.)

The next scheduled chat is TOMORROW, March 2nd at 10 PM, Eastern for a Guest Chat with Dr. Ted Friedman.

Important! People who do not have Java on their browsers may use another version of the chatroom.

Please be sure to continue on to TheCushingsChat. While you're in the Power Surge room, click on the black "X" at the top of the room (Not the X in the blue circle) This will put you in the area where you can see all the rooms listed. You'll see the one to the list that says TheCushingsChat. Double click on that name to get into the room.

If you do have menopause issues, be sure to return on Thursday nights at 9 eastern for wonderful information, guest speakers and camaraderie.

Directions: When you enter the Chat Room (http://sites.chatspace.com:8350/):

1 Enter a nickname for yourself (it would help everyone if you use the same name you use to post...but it's not necessary). NO Password is required. Your password from the boards will not work, unless you register it after you are in the chatroom. More features are available when you are registered, but it is entirely optional. If your chosen name doesn't work, it means that someone else has registered it. Pick another name and try again.

You may also choose a font size at the sign-in window, under "Options".

2 Push the "LOGIN button"

You will be in my friend's Power Surge Chat Room.

3 On the top, left side, you will see a tab that says "Rooms". Click on that and there will be a list which includes the TheCushingsChat. Click on the name to get in.

I hope to see you tonight!


~~~~~~~~~~~

Cushing's Help and Support at http://www.cushings-help.com
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