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Condolences to the family of Sue Koziol (SuziQ)
Cushing's
Awareness Day Forum in Oklahoma City, OK April 7, 2006. US Postage Stamps for Cushing's Awareness Order
Cushing's Awareness Silicone Bands for yourself, a family member or donate to a Cushing's patient at NIH Order
the CUSH Cookbook Upcoming Meetings in the Washington, DC metro area
and Oklahoma City.
ENDO 2006, Boston Convention & Exhibit Center. Read all about them below. |
| News! |
|

CUSH
Founding President,
Sue Ann
Koziol (SuziQ).
Sue was born in Michigan on August 08, 1946 and passed away on
March 12, 2006 at the age of 59.
She was a very special friend to Cushies world-wide. We will
remember her always.
There will be an online memorial for Sue during the
Cushing's Awareness Day Medical Forum in Oklahoma, April 5-8,
2006. For more information, please visit
this topic on the message boards
From the
Cushings-Help and Support Message Boards where Sue
offered so much support:
Sue, I pray you are at peace.
You made me smile with your humor on many a low day. I will
always think of you when I hear the words, “baby steps”. Your
absence here will be a hole that can never be filled. Thank you
for all you did for us.
May you be at peace with the
Lord and I will forever be grateful to your loving kindness on
this site. You never had anything but nice and supportive things
to say about everything and everyone. You will truly be missed
and it was such a pleasure to have known you.
May your family and friends find peace in this moment and may we
all remember the funny, caring and loving Sue that brought so
much love and comfort to all of us who visit this site.
I remember when I first joined
the boards back in 03, Sue and Lynne were the first to come a
long a greet me and we regularly met on a Sunday morning for
interactive coffee lol....there was also Desley from OZ, who I
know will miss her dearly too!.... she always had such a
positive outlook on life and thats coming frm someone who didn;t
know her well, but it shone thru so brightly. I think she was
sent to us from God for a purpose and we all know what that was
because she has touched so many people in so many different
ways.
God bless you sue, I will never forget you. xxxx
It's difficult to know what to
say at a time like this. It all seems so surreal.
Sue touched so many lives. It's hard to imagine these boards
without her. She was one of the first people to respond to my
posts when I joined these boards almost four years ago. I could
always count on Sue to lend an ear.
I pray that God will comfort and strengthen her family and
friends in this time of sadness and grief. May we all find
comfort in Sue's memory, and in the knowledge that she is in a
beautiful place surrounded by light and love.
Goodbye Sue. I'll miss you.
I will miss Sue greatly. She
seemed to be one of those people, to me, that I would want to
meet and spend time with. She was always encouraging in her
posts and had a fun personality. She cared about each and
everyone of us. I'm very sad that she's gone but I know she's
not suffering anymore. Thank you Jesus for taking Sue into your
loving arms and relieving her of her pain. Give her a hug and
kiss for me, please?
To my friend Sue--All your
troubles are gone and you can fly free from all pain and sorrow.
We were blessed here at Cushings for all your kind words and
wisdom. You actually took time to come and find me and talk abut
this weird thing called Cushings.
You are at peace now my friend, and I will rejoice when someday
I join you there. Amen.
I remember when I first met Sue
on-line at the old Cushings board. She always had so much energy
and happiness. Sue always wanted to help others, she had a
desire to make a difference for us Cushies. Over the years I
could see she was living her dream through this site. If you
think of all the people she has helped and supported it is
amazing. Even through all the upheaval and tragedy in her life
she always found her way back here, helping others. Sue I will
always remember you and your halo.
Thanks, Sue, for being the
great person you were. The love and help you gave will continue
to have an effect and will go from Cushie to Cushie. You were an
inspiration.
I am at a loss for words. I am
finding it very hard to type with all the tears. The world has
lost a very special lady.
I am so sorry I wasn't around
for Sue's final months. I had the pleasure of speaking with Sue
on the phone a few times. We did almost get to meet at one time,
when Sue was planning a holiday to Australia, but unfortunately
she wasn't well enough to travel.
Sue you were such a great friend to me over the last few years.
I have so many fond memories of Sue, the pink flamingo lady. You
are loved and will be greatly missed.
Sue was such an incredible person, giving of herself to so many
even when times were difficult in her own life. She was full of
endless amounts of kindness and love. And it always struck me
she was full of pluck, too! All of the traveling to meet new
people, her many many friends, her family, and her true loves.
She touched so many people in such a gentle but profound way.
But her pain with the cancer was more than any person should
have to bear. Her exhaustion during this was palpable and I
wished so much for her to have relief, a break; she deserved a
reward for a life so well lived-most definitely not this. Sue
has lived in my thoughts for weeks now-everyday I hoped just for
peace and painlessness for her.
I didn't want to see her go and I feel such a huge loss saying
goodbye far too soon to such a special person. But I feel relief
for her and a certain happiness in knowing she has some people
waiting for her that will be so happy to meet up with her again.
If ever I knew someone would be with the angels, it is Sue.
I hope she will keep an eye on all of us down here. She has
always been as soothing and comforting as a big fuzzy warm hug.
My love to you Sue, wherever you are: be happy and know you left
a mark on us all that will endure time.
My heart was telling me to call
Sue this past week. I wanted to talk to her and I missed her on
the boards. I missed her as my Cushie buddy. Unfortunately, I
missed the opportunity to talk to my friend. I found out Sunday
morning. I saw her im name on AOL and at that moment my heart
sunk. I click her info and it said passed away- call family and
friends- thank you. I just stared at the screen like it wasn't
happening, but it was. It was a nightmare. My friend, my angel
Sue passed away. I couldn't post yesterday because I was a mess.
Crying all day and talking to her spirit. Thanking her for being
that special angel here on earth. She saved my life and I know
she saved many others. She was a gift from God and she will
always be in my heart. Sue helped me out recently. She told me
to go to Oregon and see the doctors there, so I took her advice
and hopefully they cured me. I can't thank her enough for
keeping on me about going to Oregon. She always called me and
told me to go there. I was stubborn at first but I took her
wonderful advice. Thank you so much Sue.
I remember the day I met Sue
and her husband Don. It was in Columbus, Ohio at one of our
meetings. I knew that both her and Don were special people.
Cookie was there too- another special person. I will miss all of
them.
I know that Sue is in a better place where there are no tears
and no pain. She is with her husband Don. Sue I will always
think of you and I love you girl. Thank you so much for what you
have done here on earth. The Cushies are forever grateful to
have you in our lives.
To
light a candle or post a tribute for Sue, please go here:
http://suziq.memory-of.com
To
read more about Sue's journey, please click here:
http://cushings.invisionzone.com/index.php?showtopic=14655
|

From the message board post at
http://cushings.invisionzone.com/index.php?
showtopic=14273&pid=117311&st=0&#entry117311
CUSH proudly presents a Cushing's Awareness Day Forum in Oklahoma
City, OK on April 7, 2006.
Cheryl Farrar, Oklahoma CUSH Representative, has been working hard to put
together a medical forum to celebrate Cushing's Awareness Day. She has
arranged for two doctors to speak (a neurosurgeon and an adrenal surgeon)
and has a message in to a third doctor. She also is going to ask Senator
Inhofe if he would speak for us at the beginning of the forum, so that we
may thank him for the Senate Proclamation re:Cushing's Awareness Day.
Rooms are being held for us from April 5, 2006 through April 8, 2006 in the
name of CUSH at the Holiday Inn Express, 2811 NW Expressway OKC, OK 73112.
Phone number: 405-848-1500. Visit the web site here:
Holiday Inn Express OKC Penn Square
As always we will have a CUSH meeting the day prior to the forum and a fun
day afterwards.
Reservations must be made by TODAY, March 22, 2006.
There is no charge to attend this forum.
I hope to meet many Cushies at this forum.
More information will be posted soon.
I'd like to say a special 'thank you' to
Cheryl for putting this forum together for us.
More info here:
http://cushings.invisionzone.com/index.php?
showtopic=14273&pid=117311&st=0&#entry117311
Pre-order the CUSH Cookbook!
CUSH Cuisine!
Cookbook Preorder: $9.00
After they arrive: $10.00
Click here for more info |
• If you've been diagnosed with Cushing's, please participate in
the
Cushing's Register »
The information you provide will be used to create a register and will
be shared with the medical world. It would not be used for other
purposes without your expressed permission. Note: This
information will not be sold or shared with anyone else.
Lynne Clemens, Secretary of
CUSH Org is
be the person responsible for the creation of this register. If you have
any questions you may contact her at
lynnecush@comcast.net.
You do not have to be a member of CUSH to fill out this questionnaire,
as long as you are a Cushing’s patient. We do not believe that the world
has an accurate accounting of Cushing’s patients. The only way to
authenticate accuracy is with actual numbers. Your help will be
appreciated. Thank you." | | Fundraising: |
|
CUSH can always use funds to help us all, by spreading the word and helping others. What can *you* do to help CUSH?
| | Upcoming Conventions, Meetings and Seminars: | March
30, Washington DC Metro Area, Third Thursdays, More info here »
April
6-8, Oklahoma City, OK, Cushing's Awareness Day Medical
Forum, More info here » June 24-27, 2006, ENDO 2006, Boston Convention & Exhibit Center.
Plenary Lectures Announced for ENDO 2006, Boston, Massachusetts,
June 24-27
ENDO 2006 not only delivers four full days of the latest advances in
endocrine research and clinical practice, but also plenary lectures by
sixteen of the world's foremost leaders of endocrinology. For up-to-date
information on ENDO 2006, from the scientific program to registration, visit
www.endo-society.org/endo06
The 2006 plenary topics and speakers are:
* The WHI Hormone Therapy Trial: Timing is Everything
JoAnn Manson MD, DrPH, Brigham & Women's Hospital/Harvard Medical
School
* Estrogen & Cardiovascular Disease
Michael Mendelsohn, MD, FACP, Tufts University/New England Medical
Center
* Diabetes, Obesity & the Brain
Michael Schwartz, MD, University of Washington-Seattle/Harborview
Medical Center
* Neuroendocrinology of Critical Illness
Greet Van den Berghe, MD, PhD, Katholieke Universiteit Leuven,
Belgium
* Prolactin & its Receptor: More than Just the Lactation Mediator
Paul Kelly, PhD, Faculté de Médecine Necker, INSERM, France
(Gerald D. Aurbach Award Lecture)
* Thyroid Hormone & Brain Development
Juan Bernal, MD, PhD, Instituto Investigaciones Biomedicas, Madrid,
Spain
* Steroidogenesis: General Lessons from Rare Diseases
Walter Miller, MD, University of California-San Francisco
(Clinical Investigator Award Lecture)
* Genetic Pathways of Cell Death
Tak Mak, PhD, University of Toronto, Ontario, Canada
* Metabolic Syndrome
Richard Bergman, PhD, University of Southern California
* Nuclear Receptors & Endocrinology
Mitchell Lazar, MD, PhD, University of Pennsylvania School of
Medicine
(Edwin B. Astwood Award Lecture)
* Estrogens
Benita Katzenellenbogen, PhD & John Katzenellenbogen, PhD, University
of Illinois
(Roy O. Greep Award Lecture)
* Fetal Basis of Adult Disease
Susan Ozanne, PhD, University of Cambridge, United Kingdom
* Embryonic & Neural Stem Cells: Potential for Spinal Cord Repair & Other
Disease States
John Kessler, MD, Northwestern University
* Applications of Biomaterials to Regenerative Medicine
Robert Langer, ScD, Massachusetts Institute of Technology
* Cloning
Gerald Schatten, PhD, University of Pittsburgh School of Medicine
* Sex Determination
David Page, MD, Massachusetts Institute of Technology
For up-to-date information on ENDO 2006, from the scientific program to
registration, visit
www.endo-society.org/endo06
June 2-5, 2007, ENDO 2007, Toronto, Canada, Metro Toronto Center. More info as it becomes available. More upcoming local meetings are listed here »
Sign up for notification of local meetings. You need not be a CUSH member to participate.
| | Online Chats: | | Please join us in the Chat Room TONIGHT at 9 PM Eastern. The chatroom is available through http://www.cushings-help.com/chatroom.htm. The very first time you go in, you will have to register for this chat. Although you may use your user name and password from the message boards, you will still need to register those before being allowed into the room. This room is always open, and has convenient links so that you can get needed information while you're chatting. I hope to see you tonight!
 ~~~~~~~~~~~
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