What's New? 

March 22, 2006
 
If it appears that the entire newsletter is not here, or you prefer to read the HTML version of this newsletter on the Internet, it is available here: http://www.cushingsonline.com/newsletters/email/3-22-2006-email.htm.

If you should have any problems with this HTML Formatted email, please click here, and your subscription will be changed to text only.

To make sure you continue to receive Cushing's e-mail in your inbox (and that it is not sent to bulk or junk folders), please add CushingsSupport@aol.com to your address book.

Thank you for your support!

In This Issue:HappeningsSite NewsMeetingsChat Info
Our Condolences to the family of Sue Koziol (SuziQ)
Cushing's Awareness Day Forum in Oklahoma City, OK April 7, 2006.
US Postage Stamps for Cushing's Awareness
Order Cushing's Awareness Silicone Bands for yourself, a family member or donate to a Cushing's patient at NIH
Order the CUSH Cookbook
Upcoming Meetings in the Washington, DC metro area and Oklahoma City. ENDO 2006, Boston Convention & Exhibit Center.
Read all about them below.
News!



CUSH Founding President, Sue Ann Koziol (SuziQ).


Sue was born in Michigan on August 08, 1946 and passed away on March 12, 2006 at the age of 59.

She was a very special friend to Cushies world-wide. We will remember her always.

There will be an online memorial for Sue during the Cushing's Awareness Day Medical Forum in Oklahoma, April 5-8, 2006. For more information, please visit this topic on the message boards

From the Cushings-Help and Support Message Boards where Sue offered so much support:

 

Sue, I pray you are at peace. You made me smile with your humor on many a low day. I will always think of you when I hear the words, “baby steps”. Your absence here will be a hole that can never be filled. Thank you for all you did for us.


May you be at peace with the Lord and I will forever be grateful to your loving kindness on this site. You never had anything but nice and supportive things to say about everything and everyone. You will truly be missed and it was such a pleasure to have known you.

May your family and friends find peace in this moment and may we all remember the funny, caring and loving Sue that brought so much love and comfort to all of us who visit this site.


I remember when I first joined the boards back in 03, Sue and Lynne were the first to come a long a greet me and we regularly met on a Sunday morning for interactive coffee lol....there was also Desley from OZ, who I know will miss her dearly too!.... she always had such a positive outlook on life and thats coming frm someone who didn;t know her well, but it shone thru so brightly. I think she was sent to us from God for a purpose and we all know what that was because she has touched so many people in so many different ways.
God bless you sue, I will never forget you. xxxx


It's difficult to know what to say at a time like this. It all seems so surreal.

Sue touched so many lives. It's hard to imagine these boards without her. She was one of the first people to respond to my posts when I joined these boards almost four years ago. I could always count on Sue to lend an ear.

I pray that God will comfort and strengthen her family and friends in this time of sadness and grief. May we all find comfort in Sue's memory, and in the knowledge that she is in a beautiful place surrounded by light and love.

Goodbye Sue. I'll miss you.


I will miss Sue greatly. She seemed to be one of those people, to me, that I would want to meet and spend time with. She was always encouraging in her posts and had a fun personality. She cared about each and everyone of us. I'm very sad that she's gone but I know she's not suffering anymore. Thank you Jesus for taking Sue into your loving arms and relieving her of her pain. Give her a hug and kiss for me, please?


To my friend Sue--All your troubles are gone and you can fly free from all pain and sorrow. We were blessed here at Cushings for all your kind words and wisdom. You actually took time to come and find me and talk abut this weird thing called Cushings.
You are at peace now my friend, and I will rejoice when someday I join you there. Amen.


I remember when I first met Sue on-line at the old Cushings board. She always had so much energy and happiness. Sue always wanted to help others, she had a desire to make a difference for us Cushies. Over the years I could see she was living her dream through this site. If you think of all the people she has helped and supported it is amazing. Even through all the upheaval and tragedy in her life she always found her way back here, helping others. Sue I will always remember you and your halo.


Thanks, Sue, for being the great person you were. The love and help you gave will continue to have an effect and will go from Cushie to Cushie. You were an inspiration.


I am at a loss for words. I am finding it very hard to type with all the tears. The world has lost a very special lady.


I am so sorry I wasn't around for Sue's final months. I had the pleasure of speaking with Sue on the phone a few times. We did almost get to meet at one time, when Sue was planning a holiday to Australia, but unfortunately she wasn't well enough to travel.

Sue you were such a great friend to me over the last few years. I have so many fond memories of Sue, the pink flamingo lady. You are loved and will be greatly missed.

Sue was such an incredible person, giving of herself to so many even when times were difficult in her own life. She was full of endless amounts of kindness and love. And it always struck me she was full of pluck, too! All of the traveling to meet new people, her many many friends, her family, and her true loves. She touched so many people in such a gentle but profound way.

But her pain with the cancer was more than any person should have to bear. Her exhaustion during this was palpable and I wished so much for her to have relief, a break; she deserved a reward for a life so well lived-most definitely not this. Sue has lived in my thoughts for weeks now-everyday I hoped just for peace and painlessness for her.

I didn't want to see her go and I feel such a huge loss saying goodbye far too soon to such a special person. But I feel relief for her and a certain happiness in knowing she has some people waiting for her that will be so happy to meet up with her again. If ever I knew someone would be with the angels, it is Sue.

I hope she will keep an eye on all of us down here. She has always been as soothing and comforting as a big fuzzy warm hug. My love to you Sue, wherever you are: be happy and know you left a mark on us all that will endure time.


My heart was telling me to call Sue this past week. I wanted to talk to her and I missed her on the boards. I missed her as my Cushie buddy. Unfortunately, I missed the opportunity to talk to my friend. I found out Sunday morning. I saw her im name on AOL and at that moment my heart sunk. I click her info and it said passed away- call family and friends- thank you. I just stared at the screen like it wasn't happening, but it was. It was a nightmare. My friend, my angel Sue passed away. I couldn't post yesterday because I was a mess. Crying all day and talking to her spirit. Thanking her for being that special angel here on earth. She saved my life and I know she saved many others. She was a gift from God and she will always be in my heart. Sue helped me out recently. She told me to go to Oregon and see the doctors there, so I took her advice and hopefully they cured me. I can't thank her enough for keeping on me about going to Oregon. She always called me and told me to go there. I was stubborn at first but I took her wonderful advice. Thank you so much Sue.


I remember the day I met Sue and her husband Don. It was in Columbus, Ohio at one of our meetings. I knew that both her and Don were special people. Cookie was there too- another special person. I will miss all of them.
I know that Sue is in a better place where there are no tears and no pain. She is with her husband Don. Sue I will always think of you and I love you girl. Thank you so much for what you have done here on earth. The Cushies are forever grateful to have you in our lives.


To light a candle or post a tribute for Sue, please go here: http://suziq.memory-of.com

To read more about Sue's journey, please click here: http://cushings.invisionzone.com/index.php?showtopic=14655

From the message board post at http://cushings.invisionzone.com/index.php?
showtopic=14273&pid=117311&st=0&#entry117311

CUSH proudly presents a Cushing's Awareness Day Forum in Oklahoma City, OK on April 7, 2006.

Cheryl Farrar, Oklahoma CUSH Representative, has been working hard to put together a medical forum to celebrate Cushing's Awareness Day. She has arranged for two doctors to speak (a neurosurgeon and an adrenal surgeon) and has a message in to a third doctor. She also is going to ask Senator Inhofe if he would speak for us at the beginning of the forum, so that we may thank him for the Senate Proclamation re:Cushing's Awareness Day.

Rooms are being held for us from April 5, 2006 through April 8, 2006 in the name of CUSH at the Holiday Inn Express, 2811 NW Expressway OKC, OK 73112. Phone number: 405-848-1500. Visit the web site here: Holiday Inn Express OKC Penn Square

As always we will have a CUSH meeting the day prior to the forum and a fun day afterwards.

Reservations must be made by TODAY, March 22, 2006.

There is no charge to attend this forum.

I hope to meet many Cushies at this forum.

More information will be posted soon.


I'd like to say a special 'thank you' to Cheryl for putting this forum together for us.

More info here: http://cushings.invisionzone.com/index.php?
showtopic=14273&pid=117311&st=0&#entry117311

 


  Pre-order the CUSH Cookbook!

CUSH Cuisine!
Cookbook Preorder: $9.00
After they arrive: $10.00
Click here for more info

 


If you've been diagnosed with Cushing's, please participate in the Cushing's Register »

The information you provide will be used to create a register and will be shared with the medical world. It would not be used for other purposes without your expressed permission. Note: This information will not be sold or shared with anyone else.

Lynne Clemens, Secretary of CUSH Org is be the person responsible for the creation of this register. If you have any questions you may contact her at lynnecush@comcast.net. You do not have to be a member of CUSH to fill out this questionnaire, as long as you are a Cushing’s patient. We do not believe that the world has an accurate accounting of Cushing’s patients. The only way to authenticate accuracy is with actual numbers. Your help will be appreciated. Thank you."

Fundraising:
The Cushing's Store
for all kinds of Cushing's Labeled clothing, US Postage Stamps, coffee mugs, totebags and much more. Great for your endo or Secret Someone.

Order Cushing's Awareness Silicone Bands here.


Remember iGive.com...
... all year round.

iGive.com allows online stores to donate a percentage of their profit to running these Cushing's Support sites: the message boards at http://cushings.invisionzone.com/index.php?, http://www.cushings-help.com, http://www.CUSH.org, http://www.cushings-support.com and http://www.cushingsonline.com.

See the list of participating merchants »

===>  FREE $5 DONATIONS!  <===        
Through December 31, 2005, each new member who joins iGive
and shops will earn an additional $5 for the
Cushing's Support sites! That's on
top of the standard donations from shopping (up to 26%
of each purchase benefits Cushing's Help and Support!).
Only one hitch: supporters must shop within 45 days of joining to get
the bonus. With over 600 stores now at iGive.com, we have
something for everyone!


Thank you so much for your support.



CUSH can always use funds to help us all, by spreading the word and helping others. What can *you* do to help CUSH?

Upcoming Conventions, Meetings and Seminars:

March 30, Washington DC Metro Area, Third Thursdays, More info here »

April 6-8, Oklahoma City, OK, Cushing's Awareness Day Medical Forum, More info here »

June 24-27, 2006, ENDO 2006, Boston Convention & Exhibit Center.
Plenary Lectures Announced for ENDO 2006,   Boston, Massachusetts, June 24-27

ENDO 2006 not only delivers four full days of the latest advances in endocrine research and clinical practice, but also plenary lectures by sixteen of the world's foremost leaders of endocrinology. For up-to-date information on ENDO 2006, from the scientific program to registration, visit www.endo-society.org/endo06
 
The 2006 plenary topics and speakers are:

* The WHI Hormone Therapy Trial:  Timing is Everything
     JoAnn Manson MD, DrPH, Brigham & Women's Hospital/Harvard Medical School

* Estrogen & Cardiovascular Disease
     Michael Mendelsohn, MD, FACP, Tufts University/New England Medical Center

* Diabetes, Obesity & the Brain
     Michael Schwartz, MD, University of Washington-Seattle/Harborview Medical Center

* Neuroendocrinology of Critical Illness
     Greet Van den Berghe, MD, PhD, Katholieke Universiteit Leuven, Belgium

* Prolactin & its Receptor: More than Just the Lactation Mediator
     Paul Kelly, PhD, Faculté de Médecine Necker, INSERM, France
     (Gerald D. Aurbach Award Lecture)

* Thyroid Hormone & Brain Development
     Juan Bernal, MD, PhD, Instituto Investigaciones Biomedicas, Madrid, Spain

* Steroidogenesis: General Lessons from Rare Diseases
     Walter Miller, MD, University of California-San Francisco
     (Clinical Investigator Award Lecture)

* Genetic Pathways of Cell Death
     Tak Mak, PhD, University of Toronto, Ontario, Canada

* Metabolic Syndrome
     Richard Bergman, PhD, University of Southern California

* Nuclear Receptors & Endocrinology
     Mitchell Lazar, MD, PhD, University of Pennsylvania School of Medicine
     (Edwin B. Astwood Award Lecture)

* Estrogens
     Benita Katzenellenbogen, PhD & John Katzenellenbogen, PhD, University of Illinois
     (Roy O. Greep Award Lecture)

* Fetal Basis of Adult Disease
     Susan Ozanne, PhD, University of Cambridge, United Kingdom

* Embryonic & Neural Stem Cells: Potential for Spinal Cord Repair & Other Disease States
     John Kessler, MD, Northwestern University

* Applications of Biomaterials to Regenerative Medicine
     Robert Langer, ScD, Massachusetts Institute of Technology

* Cloning
     Gerald Schatten, PhD, University of Pittsburgh School of Medicine

* Sex Determination
     David Page, MD, Massachusetts Institute of Technology
 

For up-to-date information on ENDO 2006, from the scientific program to registration, visit www.endo-society.org/endo06
 

June 2-5, 2007, ENDO 2007, Toronto, Canada, Metro Toronto Center. More info as it becomes available.

More upcoming local meetings are listed here »

Sign up for notification of local meetings. You need not be a CUSH member to participate.

Online Chats:
Please join us in the Chat Room TONIGHT at 9 PM Eastern.

The chatroom is available through http://www.cushings-help.com/chatroom.htm.

The very first time you go in, you will have to register for this chat. Although you may use your user name and password from the message boards, you will still need to register those before being allowed into the room.

This room is always open, and has convenient links so that you can get needed information while you're chatting.

I hope to see you tonight!


~~~~~~~~~~~

Cushing's Help and Support at
http://www.cushings-help.com
Cushing's Message Boards at
http://cushings.invisionzone.com/index.php?
Subscribe and Unsubscribe: Cushing's Newsletters and Chat Reminders
http://www.cushings-help.com/aim.htm#reminder

 

©2000-2006 Cushing's Help and Support. All rights reserved.
Privacy Policy
Disclaimer