What's New?

April 9, 2003

In This Issue:Member NewsSite News Meetings NewsChat Info
Our deepest sympathy goes out to the family of Shawn L's niece who recently died as a result of Cushing's. She left behind 3 beautiful sons.

Please express your condolences here.

Important!

Please read the chat directions below, so you're ONLY in the Cushing's Room, not both Cushing's and Power Surge. Many people end up being in both rooms, instead of only one.



Next Online Newsletter will be Wednesday, April 16
read archived issues here.
Birthdays:Other Celebrations:
• Jennifer, April 11
• Ali, April 12
• maggypaul, April 13
• Mirage, April 16
• Cookie is home and getting better every day!

• Melinda Freels, is finally finished with 6 weeks of daily Fractionated Stereotactic Radiation
Upcoming Surgery:Currently Recovering:
• Sue (SuziQ), removal of a surgical hernia, the afternoon of April 9.

• Allie, Adrenal surgery, Sutter Memorial Hospital, April 14.

• Gloria, Pituitary surgery, April 14

Pituitary
• Lynn P
• Daphne
• Dina
• Jinxie
• Arlene
• Jaime
• Rikki
• Duncan (Karen)
• Cat
• Dana
• Dee (deleciab)
• Cherri in AL
• Linda P. (tinydogpries)
• BrendaC
• Darren Shore
• Erin G.
Adrenal
• Sam
• Teri T
• CathyR
• bp50 (Barb Power)
• Angela Kaiser
• Melinda 2
• Deborah's son, Curtis, from a second adrenal surgery
• Suzanne
• Debbie
• Kathie Mcconnell (kamaroon)
• Denise
Other
• Melinda Freels, 6 weeks of daily Fractionated Stereotactic Radiation
• Luisa (LSpriggs), gamma knife at UVA
• Sean S, Ectopic, thymus removed
• Dori, gamma knife at UVA
News!
• Download the Hotel Reservation Information (Word File) for Portland, OR, CUSH meeting, October 2003, here.

If you must call them instead of filling out this form, the number is 503-221-1611 and for the special rates, you need to say that you're with:
Group Name: Cushing's Understanding, Support and Help Organization
For this Event: Cushing's Organizations 10.03
Dates: October 14-19, 2003
Map: Map to the Convention Site

• The Pituitary bios have been split into Pituitary A-L and Pituitary M-Z

• There are now 1367 members on the Message Boards

• We welcome your articles, letters to the editor, bios and Cushing's information. Submit a Story or Article to either the snailmail CUSH Newsletter or to an upcoming email newsletter at http://www.cushings-help.com/newsletter_story.htm A no-obligation free sample of the CUSH Organization Newsletter is also available from that same link.

• A list of Current CUSH Organization members is available here.


Newest Bios:
To add or edit your bio, please click here.
CherylPituitary
Surgery June 2002 at HUP
Bethlehem, PA
Kristina LenartowiczPituitary
The tumor went away by itself.
Muskegon, Michigan
ScottPituitary surgery
March 24, 2003
UVA
Ashburn, Virginia

• If you've been diagnosed with Cushing's, please participate in the Cushing's Register

The information you provide will be used to create a register and will be shared with the medical world. It would not be used for other purposes without your expressed permission. Note: This information will not be sold or shared with other companies.

Lynne Clemens, Secretary of CUSH Org is be the person responsible for the creation of this register. If you have any questions you may contact her at lynnemc@attbi.com. You do not have to be a member of CUSH to fill out this questionnaire, as long as you are a Cushing’s patient. We do not believe that the world has an accurate accounting of Cushing’s patients. The only way to authenticate accuracy is with actual numbers. Your help will be appreciated. Thank you."

Fundraising:
Decorative Candles:
Julia (Spencer's Mom) is beginning to make food oriented candles - shaped like sundaes, pies, and other desserts. She will donate 20% of the proceeds to CUSH and she's even trying to making a candle in the shape of the CUSH pin!

5” Pies $10 each

These three-wick tantalizing pies are appropriately scented.  They come in a bakery container and make a great gift!  Strawberry, Cherry, Apple, Blueberry (with lattice top) 

Chocolate & Pecan (without lattice top)

3” Pie Tarts $5 each

These are the same as the 5” pies, only smaller!

Strawberry, Cherry, Apple, Blueberry, Chocolate & Pecan (all no lattice top) with lattice top add $1

Cobblers $12 each Just like Mom used to make only without the calories!
Peach, Blackberry, Cherry

Cupcakes $3 each or 12 for $30

Looking for a unique Birthday gift?  How about a plate of Cupcake Candles?  Vanilla or Chocolate “cake” with white frosting and sprinkles

Cinnamon Bun - $12 (not pictured)
Just imagine hot cinnamon buns fresh out of the oven and that is what you’ll get with this huge candle.  (plates vary)


 Chunk Candles
Floating Candles: choice of colors & scents


These can be customized with your choice of color chunks.
Tealights 6 for $3.00


3 x 4” hex $12
Tarts 6 for $5.00

Pyramid  $15
Votive $1.50

Please allow 2 weeks for delivery, as each candle is hand poured.  Complete the order form below and e-mail to jwahlton@cfl.rr.com.  20% of proceeds will be donated back to CUSH.  Payment is made via Paypal only to jwahlton@cfl.rr.com.  Once order is placed we will send you a Paypal invoice for payment, which will include shipping charges. 

Colors:

Black, Blue, Brown, Gold, Grey, Ivory, Lavender, Orange, Purple, Red, Yellow, White


Coral, Lime Green, Hot Pink (these are fluorescent and will glow under a black light)

* If you do not see a color here ask me and I’ll try to get it for you

Scents:

Carnation, Cherry, Chocolate, Chocolate Chip Cookie, Cinnamon, Coffee, Cucumber, Eucalyptus, Floral, Georgia Peaches, Hot Apple Pie, McIntosh Apple, Musk, Orange Blossom, Pear Blossom, Polo (for Men), Raspberry, Sugar Cookie, Vanilla

* If you do not see a scent here ask me and I’ll try to get it for you
I’m constantly adding new products so if you’re looking for something just ask!

Cushings Support Fundraiser

QTY

ITEM DESCRIPTION

SCENT/COLOR

COST

EX: 1

5” pie

Apple

$10.00

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Total:

 


Cape Cod Candles:
Lynn in Va Cushieinvirginia@msn.com) has an idea for a CUSH fundraiser. Her friend Sherri has been a Party-Lite Candle consultant for many years. The candles have several different scents/colors to choose from: Cinnamon Stick (Brown), Raspberry/Thyme (raspberry), Mulberry (Mulberry), Ocean Mist (Royal Blue), Bayberry (Sage), Lime/Cilantro (light sage), Honeydew (Mint), Pear / Basil (Yellow), Vanilla (Ivory). There is an optional lid and a platter to go underneath.

These would make terrific Secret Someone gifts and you'd be helping CUSH out at the same time!

The candles are all pure Cape Cod candles. The total cost is 15.00 per candle including shipping/handling. Sherri has offered us her commission, $3.00 for each candle that is sold, to go to our CUSH Organization.

For an order form, please email Cushieinvirginia@msn.com or download here in Excel format.

Please send checks with orders to:
Sherri Blakeman
7808 Knollwood Street
Brandywine, MD 20613


You may also email orders to Sherriblakeman@comcast.net and mail the checks to her.

Many thanks to Lynn and Sherri!

Burden Bears:
Natalie has been collecting some money for CUSH.

She says: "I am making "Burden Bears" and selling them at my craft shows and I am donating $1 from each sale... ...So far I have collected about $20 for us."

The Cushing's Store
for all kinds of Cushing's Labled clothing, coffee mugs, totebags and much more. Great for your endo or Secret Someone.
Remember iGive.com...
... all year round.

iGive.com allows online stores to donate a percentage of their profit to running these Cushing's Support sites (the message boards, http://www.cushings-help.com, http://www.CUSH.org, http://www.cushings-support.com and http://www.cushingsonline.com) at no cost to you. So far, members have raised $226.28, and it hasn't cost them a cent.

Extended Deadline! Extra! Extra! Read all about it. $5 Free Donation. Through May 31, 2003, (extended deadline) each new member who registers at iGive and shops will earn an additional $5 for these Cushing's Support sites. That's on top of the standard of up to 26% from their shopping. Only hitch - they've got to shop within 45 days of joining. With over 410 stores now at iGive.com, they've got some great choices.

See the list of participating merchants.

Thank you so much for your support!

Thanks to all of you for these clever Fundraising ideas.

CUSH can always use funds to help us all, by spreading the word and helping others. What can *you* do to help CUSH?


Upcoming Local Meetings:
• Shauna has been busy setting this up...CUSH is proud to announce that we are planning a meeting for October of 2003 in beautiful Portland, Oregon.

We have arranged to have Dr. David Cook of Oregon Health Sciences University speak to our group. Dr. Cook is an Cushing's expert and we are honored to have him speak.

We've added another speaker (thanks Cookie!), a neurosurgeon who works with Dr. Cook's patients. His name is Dr. Johnny Deleshaw, and he's the one who performed Kelly and Emilie's surgeries.

We are also arranging to have additional speakers, including (hopefully) a neuropsychologist and a gynecologist, to help us with all that goes with Cushing's Syndrome.

Our rooms are booked at the Days Inn City Center location. The cost for a single room suite is $59.00 for one or two beds with NO BREAKFAST or $69.00 for one or two beds with a Full American Breakfast. In either case, there will be an 11.5% occupancy tax. Both smoking and non-smoking are available. Download the Hotel Reservation Information (Word File) for Portland, OR, CUSH meeting, October 2003, here.

The dates will be: October 16, 17 and 18th, with departure on the 19th. Our schedule will be as follows:

Thursday: General meeting of CUSH, one hour CUSH officers meeting, evening cocktail hour.

Friday: Conference with our speakers and a catered lunch, courtesy of CUSH. Dinner out that night (we'll provide selections).

Saturday: FUN!! We're looking at either a boat ride down the Columbia Gorge or possibly at train ride down the Gorge.

Sunday: Hugs, tears and goodbyes

There will be a small charge (donation, tax deductible) to attend the conference, but we are sure it will be worth every cent. Many of us are putting in lots of work to make this an unforgettable, yearly event. We will invite you to tell your doctors about this - YOU NEED NOT BE A MEMBER OF CUSH TO ATTEND. We will have materials available for you to post and give your doctor to promote this event. It will be very professional and we will have some fun events planned.

We are setting a date after which attendance will be restricted. Tentatively, we are looking at until June for Conference attendance and July as the last time to book a room. All of this is subject to change, as we're still ironing out details.

Download the Hotel Reservation Information (Word File) for Portland, OR, CUSH meeting, October 2003, here.

If you must call them instead of filling out this form, the number is 503-221-1611 and for the special rates, you need to say that you're with:
Group Name: Cushing's Understanding, Support and Help Organization
For this Event: Cushing's Organizations 10.03
Dates: October 14-19, 2003

Thanks to everyone - this is going to be one great conference!


• Upcoming Cushing's Lunch, Columbia, South Carolina area. Renea is setting this up. More info here.

• Sign up for notification of local meetings. You need not be a CUSH member to participate.

• Friday and Saturday, April 1-3, 2004. Pituitary Days Convention for Doctors and Patients at UVa, Charlottesville, VA. More information here. There will be many people from the message boards there. CUSH will have a meeting during this time, as well.

• Tentative Atlanta area meeting. Carol Perkins, former model - Victoria's Secret, Harper's Bazaar, Vogue, and the founder of Harry Barker in Savannah - has agreed to share her inspiring story. More information, as it becomes available, or check here

• More upcoming local meetings are listed here.

• To list other local meetings, please send an email.

From NIH Clinical Trials listings:
Search term:CUSHING'S

RecruitingLong Term Post Operative Follow-Up of Cushing Syndrome
Condition: Cushing Syndrome
RecruitingNew Imaging Techniques in the Evaluation of Patients with Ectopic Cushing's Syndrome
Condition: Cushing's Syndrome
RecruitingStudy of Hypercortisolism in Cushing's Syndrome and Stress-Induced Pseudo-Cushing's Syndrome
Condition: Cushing's Syndrome
RecruitingStudy of Depression, Peptides, and Steroids in Cushing's Syndrome
Condition: Cushing's Syndrome
RecruitingGenetic Investigation of Pediatric Tumors of the Pituitary Gland
Conditions: Abnormalities; Craniopharyngioma; Cushing's Syndrome; Endocrine Disease; Pituitary Neoplasm
RecruitingDose Response Relationship for Single Doses of Corticotropin Releasing Hormone (CRH) in Normal Volunteers and in Patients with Adrenal Insufficiency
Conditions: Adrenal Gland Hyperfunction; Adrenal Gland Hypofunction; Cushing's Syndrome; Healthy
RecruitingDefining the Genetic Basis for the Development of Primary Pigmented Nodular Adrenocortical Disease (PPNAD) and the Carney Complex
Conditions: Cushing's Syndrome; Hereditary Neoplastic Syndrome; Lentigo; Neoplasm; Testicular Neoplasm
RecruitingBone Mineral Density in Patients with Major Depression
Conditions: Healthy; Involutional Depression; Osteoporosis
RecruitingSerotonin Receptor Imaging in Mood Disorders
Condition: Mood Disorder
RecruitingStudy of Adrenal Gland Tumors
Condition: Adrenal Gland Neoplasm

Search term:  ADRENAL

RecruitingCatecholamine Reserve and Exercise Tolerance in Healthy Volunteers and Patients with Congenital Adrenal Hyperplasia
Conditions: Congenital Adrenal Hyperplasia; Healthy
RecruitingThree Drug Combination Therapy versus Conventional Treatment of Children with Congenital Adrenal Hyperplasia
Conditions: Congenital Adrenal Hyperplasia; Growth Disorder
RecruitingDose Response Relationship for Single Doses of Corticotropin Releasing Hormone (CRH) in Normal Volunteers and in Patients with Adrenal Insufficiency
Conditions: Adrenal Gland Hyperfunction; Adrenal Gland Hypofunction; Cushing's Syndrome; Healthy
RecruitingIodine I-131 Iodocholesterol, its use in adrenal screening
Conditions: Adrenal Gland Diseases; Adrenal Gland Neoplasms
RecruitingStudy of Adrenal Gland Tumors
Condition: Adrenal Gland Neoplasm
RecruitingAntineoplaston Therapy in Treating Patients With Stage IV Adrenal Gland Cancer
Conditions: stage IV adrenocortical carcinoma; recurrent adrenocortical carcinoma
RecruitingCongenital adrenal hyperplasia: Calcium channels as therapeutic targets
Condition: Congenital Adrenal Hyperplasia
RecruitingBrain Imaging of Childhood Onset Psychiatric Disorders, Endocrine Disorders and Healthy Children
Conditions: Autoimmune Disease; Congenital Adrenal Hyperplasia; Healthy; Mental Disorder Diagnosed in Childhood; Neurologic Manifestations
RecruitingDefining the Genetic Basis for the Development of Primary Pigmented Nodular Adrenocortical Disease (PPNAD) and the Carney Complex
Conditions: Cushing's Syndrome; Hereditary Neoplastic Syndrome; Lentigo; Neoplasm; Testicular Neoplasm
RecruitingDiagnostic Study of Adrenal Cortical Function in Children With Septic Shock
Condition: Septic Shock
RecruitingHeart Disease Risk Factors in Major Depression
Conditions: Adrenal Gland Hyperfunction; Cardiovascular Disease; Involutional Depression
RecruitingStem Cell Transplantation for Metastatic Solid Tumors
Conditions: Cholangiocarcinoma; Colon/Rectal Ca; Bladder Ca; Breast Ca; Basal Cell Ca; Adrenal Ca; Esophageal/Gastric Ca; Hepatocellular Ca; Ovarian Ca; ...
RecruitingNew Imaging Techniques in the Evaluation of Patients with Ectopic Cushing's Syndrome
Condition: Cushing's Syndrome
RecruitingStudy of Depression, Peptides, and Steroids in Cushing's Syndrome
Condition: Cushing's Syndrome
RecruitingCombination Chemotherapy and Tamoxifen in Treating Patients With Solid Tumors
Conditions: adult primary liver cancer; adult soft tissue sarcoma; childhood soft tissue sarcoma; Brain Tumor; Thyroid Cancer; childhood liver cancer
RecruitingAsthma Clinical Research Network (ACRN)
Conditions: Asthma; Lung Diseases
Not yet recruitingHormone Therapy Compared With Combination Chemotherapy in Treating Patients With Prostate Cancer
Conditions: adenocarcinoma of the prostate; stage III prostate cancer
Not yet recruitingStudy of Bile Acids in Patients With Peroxisomal Disorders
Conditions: Infantile Refsum's Disease; Zellweger Syndrome; Bifunctional Enzyme Deficiency; Adrenoleukodystrophy
RecruitingStudy of Pulmonary Complications in Pediatric Patients With Storage Disorders Undergoing Allogeneic Hematopoietic Stem Cell Transplantation
Conditions: I Cell Disease; Fucosidosis; Globoid Cell Leukodystrophy; Adrenoleukodystrophy; Mannosidosis; Niemann-Pick Disease; Pulmonary Complications; ...
RecruitingStudy of Glyceryl Trierucate and Glyceryl Trioleate (Lorenzo's Oil) Therapy in Male Children with Adrenoleukodystrophy
Condition: Adrenoleukodystrophy
RecruitingGenetic Investigation of Pediatric Tumors of the Pituitary Gland
Conditions: Abnormalities; Craniopharyngioma; Cushing's Syndrome; Endocrine Disease; Pituitary Neoplasm
RecruitingOvarian Follicle Function in Patients with Premature Ovarian Failure
Conditions: Amenorrhea; Hypoaldosteronism; Hypogonadism; Infertility; Premature Ovarian Failure
RecruitingStudy of Hypercortisolism in Cushing's Syndrome and Stress-Induced Pseudo-Cushing's Syndrome
Condition: Cushing's Syndrome
RecruitingLong Term Post Operative Follow-Up of Cushing Syndrome
Condition: Cushing Syndrome
RecruitingStudy of Oral Cholic Acid in Patients With Inborn Errors of Bile Acid Synthesis
Conditions: Infantile Refsum's Disease; Zellweger Syndrome; Hyperpipecolic Acidemia; Adrenoleukodystrophy; Peroxisomal Disorders; Cholestasis; ...
RecruitingTreatment of Uterine Fibroids with CDB-2914, an Experimental Selective Progesterone Receptor Antagonist
Condition: Leiomyoma
Recruiting131MIBG to Treat Malignant Pheochromocytoma
Condition: Pheochromocytoma
RecruitingHormone Therapy With or Without Docetaxel And Estramustine in Treating Patients With Prostate Cancer That is Locally Advanced or At High Risk of Relapse
Conditions: stage III prostate cancer; stage II prostate cancer
RecruitingCombination Chemotherapy Plus Hormone Therapy in Treating Patients With Metastatic Prostate Cancer
Conditions: adenocarcinoma of the prostate; stage IV prostate cancer; recurrent prostate cancer
Not yet recruitingComplementary Naturopathic Medicine for Periodontitis
Condition: Periodontitis
RecruitingEffects on the Brain of Lupron Induced Hypogonadotropic Hypogonadism with and without Estrogen and Progesterone Replacement
Condition: Hypogonadism
RecruitingHormone Therapy and OGX-011 in Treating Patients Undergoing Surgery for Prostate Cancer
Conditions: adenocarcinoma of the prostate; stage III prostate cancer; stage II prostate cancer
RecruitingHormone Therapy Followed By Internal Radiation Therapy in Treating Patients With Locally Recurrent Prostate Cancer
Conditions: adenocarcinoma of the prostate; stage I prostate cancer; stage II prostate cancer; recurrent prostate cancer
RecruitingComparison of Radiation Therapy Plus Hormone Therapy, Radiation Therapy Alone, and Hormone Therapy Alone in Treating Patients With Stage III Prostate Cancer
Conditions: stage III prostate cancer; stage II prostate cancer
RecruitingEvaluation of Patients with Endocrine-Related Conditions
Conditions: Endocrine Disease; Glucose Intolerance; Hyperinsulinemia; Impaired Glucose Tolerance; Non Insulin Dependent Diabetes Mellitus; Obesity; ...
RecruitingLeuprolide Acetate (Lupron) for the Treatment of Menstrually-Related Mood Disorders (MRMD)
Conditions: Depressive Disorder; Mood Disorder
RecruitingHormone Therapy Plus Chemotherapy in Treating Patients With Prostate Cancer
Conditions: adenocarcinoma of the prostate; stage II prostate cancer; stage III prostate cancer; stage IV prostate cancer; recurrent prostate cancer
RecruitingDiagnosis of Pheochromocytoma
Condition: Pheochromocytoma
RecruitingPilot Study of Intravitreal Injection of EYE001 (Anti-VEGF Pegylated Aptamer) For Advanced Ocular Disease Of Von Hippel-Lindau (VHL) Disease
RecruitingAcupuncture to Reduce Symptoms of Advanced Colorectal Cancer
Condition: Colorectal Neoplasms
RecruitingBone Mineral Density in Patients with Major Depression
Conditions: Healthy; Involutional Depression; Osteoporosis
RecruitingTreatment of Mid-Life-Related Mood Disorders
Conditions: Depressive Disorder; Mood Disorder
RecruitingChemotherapy, Hormone Therapy, and Radiation Therapy in Treating Patients with Locally Advanced Prostate Cancer
Conditions: adenocarcinoma of the prostate; stage III prostate cancer; stage IV prostate cancer

Search term:  PITUITARY

RecruitingGenetic Investigation of Pediatric Tumors of the Pituitary Gland
Conditions: Abnormalities; Craniopharyngioma; Cushing's Syndrome; Endocrine Disease; Pituitary Neoplasm
RecruitingStudy of Thyrotropin-Releasing Hormone in Normal Volunteers and in Patients with Thyroid or Pituitary Abnormalities
Conditions: Healthy; Pituitary Disease; Thyroid Disease
RecruitingEvaluation of Patients with Thyroid Disorders
Conditions: Hyperthyroidism; Hypothyroidism; Pituitary Neoplasm
RecruitingThe Treatment and Natural History of Acromegaly
Conditions: Acromegaly; Pituitary Neoplasm
RecruitingAntineoplaston Therapy in Treating Patients With Neuroendocrine Tumor That Is Metastatic or Unlikely to Respond to Surgery or Radiation Therapy
Conditions: ACTH-producing pituitary tumor; prolactin-producing pituitary tumor; growth hormone-producing pituitary tumor; recurrent pituitary tumor; ...
RecruitingAndrogen Replacement Therapy in Women with Hypopituitarism
Condition: Hypopituitarism
RecruitingMeasurement of Outcome of Surgical Treatment in Patients With Acromegaly
Condition: Acromegaly
RecruitingStudy of the Pathogenesis and Pathophysiology of Familial Neurohypophyseal Diabetes Insipidus
Conditions: Diabetes Insipidus; Diabetes Insipidus, Neurohypophyseal
RecruitingSyndrome of Inappropriate Antidiuretic Hormone Secretion (SIADH)
Conditions: Syndrome of Inappropriate ADH (SIADH) Secretion; Hyponatremia
RecruitingRandomized Study of Growth Hormone on Bone Mineral Density in Patients With Adult Onset Growth Hormone Deficiency
Conditions: Osteoporosis; Growth Hormone Deficiency
RecruitingLeuprolide Acetate (Lupron) for the Treatment of Menstrually-Related Mood Disorders (MRMD)
Conditions: Depressive Disorder; Mood Disorder
RecruitingNew Imaging Techniques in the Evaluation of Patients with Ectopic Cushing's Syndrome
Condition: Cushing's Syndrome
RecruitingLong Term Post Operative Follow-Up of Cushing Syndrome
Condition: Cushing Syndrome
RecruitingAntineoplaston Therapy in Treating Patients With Brain Tumors
Condition: Brain Tumor
RecruitingDose Response Relationship for Single Doses of Corticotropin Releasing Hormone (CRH) in Normal Volunteers and in Patients with Adrenal Insufficiency
Conditions: Adrenal Gland Hyperfunction; Adrenal Gland Hypofunction; Cushing's Syndrome; Healthy
RecruitingEffects on the Brain of Lupron Induced Hypogonadotropic Hypogonadism with and without Estrogen and Progesterone Replacement
Condition: Hypogonadism
RecruitingAn Endocrine Model for Postpartum Mood Disorders
Conditions: Depressive Disorder; Mood Disorder; Postpartum Depression
RecruitingDefining the Genetic Basis for the Development of Primary Pigmented Nodular Adrenocortical Disease (PPNAD) and the Carney Complex
Conditions: Cushing's Syndrome; Hereditary Neoplastic Syndrome; Lentigo; Neoplasm; Testicular Neoplasm
RecruitingStudy of Recombinant Human Insulin-Like Growth Factor I in Patients with Severe Insulin Resistance
Conditions: Insulin Resistance; Hyperglycemia
Not yet recruitingComplementary Naturopathic Medicine for Periodontitis
Condition: Periodontitis
RecruitingAcupuncture to Reduce Symptoms of Advanced Colorectal Cancer
Condition: Colorectal Neoplasms
RecruitingStudy of Depression, Peptides, and Steroids in Cushing's Syndrome
Condition: Cushing's Syndrome
RecruitingCombined Hormone Replacement in Menstrually Related Mood Disorders
Condition: Premenstrual Syndrome
RecruitingLeuprolide in Determining the Cause of Gonadotropin Deficiency
Condition: Hypogonadism

Search term:  CARNEY COMPLEX

RecruitingDefining the Genetic Basis for the Development of Primary Pigmented Nodular Adrenocortical Disease (PPNAD) and the Carney Complex
Conditions: Cushing's Syndrome; Hereditary Neoplastic Syndrome; Lentigo; Neoplasm; Testicular Neoplasm

Search term:  ECTOPIC

RecruitingNew Imaging Techniques in the Evaluation of Patients with Ectopic Cushing's Syndrome
Condition: Cushing's Syndrome
RecruitingStudy of Adrenal Gland Tumors
Condition: Adrenal Gland Neoplasm

Online Chats:
Please join us in the Chat Room (click here, and then continue on to TheCushingsChat. See directions below.)

The next scheduled chat is TONIGHT at 9 PM, Eastern, when we will discuss Cushing's, troubles with diagnosis, symptoms and much more.

Important! The chat room has been updated and will look different to folks who have been around before - there are some new features, and some of the old ones have moved to a new place, so it might take a little getting used to. People who do not have Java on their browsers may use another version of the chatroom.

Please be sure to continue on to TheCushingsChat. While you're in the Power Surge room, click on the black "X" at the top of the room (Not the X in the blue circle) This will put you in the area where you can see all the rooms listed. You'll see the one to the list that says TheCushingsChat. Double click on that name to get into the room.

If you do have menopause issues, be sure to return on Thursday nights at 9 eastern for wonderful information, guest speakers and camaraderie.

Not sure how these times relate to where you are? Here's a Time Zone Converter

Directions: When you enter the Chat Room (http://sites.chatspace.com:8350/):

1 Enter a nickname for yourself (it would help everyone if you use the same name you use to post...but it's not necessary). NO Password is required. Your password from the boards will not work, unless you register it after you are in the chatroom. More features are available when you are registered, but it is entirely optional. If your chosen name doesn't work, it means that someone else has registered it. Pick another name and try again.

You may also choose a font size at the sign-in window, under "Options".

2 Push the "LOGIN button"

You will be in my friend's Power Surge Chat Room.

3 On the top, left side, you will see a tab that says "Rooms". Click on that and there will be a list which includes the TheCushingsChat. Click on the name to get in.

I hope to see you tonight!


~~~~~~~~~~~

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