What's New?

May 19, 2004

To read the HTML version of this newsletter, or the archives, on the Internet, please click here. In This Issue: Happenings Site News Meetings Chat Info Important! Please read the chat directions below and at http://www.cushings-help.com/chatroom.htm, so you're ONLY in the Cushing's Room, not both Cushing's and Power Surge. Many people end up being in both rooms, instead of only one. Next Online Newsletter will be Wednesday, May 26 read archived issues here » News! • There are now 2274 members on the Message Boards. • We welcome your articles, letters to the editor, bios and Cushing's information. Submit a Story or Article to either the snailmail CUSH Newsletter or to an upcoming email newsletter at http://www.cushings-help.com/newsletter_story.htm A no-obligation free sample of the CUSH Organization Newsletter is also available from that same link. Newest Bios: To add or edit your bio, please click here. Anita (Inkognita) Inkognita has adrenal Cushing's Shelby, NC Ann N. Ann has had pituitary surgery. Southwest Missouri Bethany Bethany is not yet diagnosed Wisconsin Cheryl Cheryl had adrenal surgery. Austin, Texas Cynthia S Cynthia is not yet diagnosed Oregon Hilary Hilary has acromegaly England Izzy Most likely pituitary. MRI showed enlarged pit gland. Woodside, NY Jaime Jaime had pituitary surgery Updated, pictures added New Orleans, LA Jennifer S Jennifer has a pituitary tumor. Irving, TX LeAnne LeAnne had pituitary surgery March 23, 2004 Provo, UT Mrs. Smith Mrs.. Smith is not yet diagnosed Lots of places, mostly Atlanta Pat G Pat G has pictures added Pat has had pituitary surgery and has been diagnosed with Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS), Fibromyalgia, and Environmental Illness/Multiple Chemical Sensitivities Valencia, CA Ron H Ron is not yet diagnosed Los Gatos, CA Roxanne M Roxanne had adrenal surgery April 30, 2003 Gaston, OR Sam Sam's bio has been updated to include an NIH Poster and timeline.  Sam is a young child who was born with cyclic adrenal Cushing's Snohomish County, WA Sharon K Sharon K is not yet diagnosed Austin, Texas Sheryl R Sheryl had a bilateral adrenal surgery (BLA) in 1974 Jenison, MI Valerie Val updated her bio. She's had pituitary surgery Novato, CA • If you've been diagnosed with Cushing's, please participate in the Cushing's Register » The information you provide will be used to create a register and will be shared with the medical world. It would not be used for other purposes without your expressed permission. Note: This information will not be sold or shared with other companies. Lynne Clemens, Secretary of CUSH Org is be the person responsible for the creation of this register. If you have any questions you may contact her at lynnecush@comcast.net. You do not have to be a member of CUSH to fill out this questionnaire, as long as you are a Cushing’s patient. We do not believe that the world has an accurate accounting of Cushing’s patients. The only way to authenticate accuracy is with actual numbers. Your help will be appreciated. Thank you."   Fundraising: Burden Bears: Natalie has been collecting some money for CUSH. She says: "I am making "Burden Bears" and selling them at my craft shows and I am donating $1 from each sale... ...So far I have collected about $20 for us."   The Cushing's Store for all kinds of Cushing's Labeled clothing, coffee mugs, totebags and much more. Great for your endo or Secret Someone. Remember iGive.com... ... all year round. iGive.com allows online stores to donate a percentage of their profit to running these Cushing's Support sites (the message boards, http://www.cushings-help.com, http://www.CUSH.org, http://www.cushings-support.com and http://www.cushingsonline.com) at no cost to you. So far, members have raised $297.01, and it hasn't cost them a cent. See the list of participating merchants »   Thank you so much for your support. Thanks to all of you for these clever Fundraising ideas. CUSH can always use funds to help us all, by spreading the word and helping others. What can *you* do to help CUSH?   Upcoming Conventions, Meetings and Seminars: •CUSH is proud to announce the Convention for October, 2004 in Nashville, TN. Dr. Lewis S. Blevins will be the keynote speaker of the 2004 CUSH Convention at Vanderbilt Ingram Cancer Center, Preston Research Building, Nashville, TN. Dr. Scott C Isaacs will also be among the speakers. Dr. Issacs' topic will be "Coping With Cushings Through Diet and Lifestyle". More info here » Tickets and housing are now available. This info is on the message boards. •Pictures from the 2003 CUSH Convention, Portland Oregon: Day 1, Informal Meetings, Martha's pictures Day 1, Informal Meetings, Tom's pictures Day 2, Doctor Seminars and Dinner Out, Shauna's pictures Day 2, Doctor Seminars, Tom's pictures Days 2 and 3, Doctor Seminars and Oregon Coast, Melinda's pictures Day 3, Oregon Coast, Martha's pictures Day 3, Oregon Coast, Tom's pictures Pictures from Spaghetti Freddy's, May 1, 2004. This "Massachusetts local meeting" turned out to have people from Massachusetts, Connecticut, Rhode Island, Michigan, Virginia and Canada! June 5, 2004. Local meeting and luncheon, Greenville, South Carolina. more info » June 16-19, 2004 New Orleans, Endo2004. More info here » Friday, October 22, 2004 Dr. Lewis S. Blevins will be the keynote speaker of the 2004 CUSH Convention in Nashville, TN. Dr. Scott Issacs and Sharmyn McGraw will also be speaking. More info here ». • More upcoming local meetings are listed here » • Sign up for notification of local meetings. You need not be a CUSH member to participate. Online Chats: Please join us in the Chat Room TONIGHT at 9 PM Eastern. (Click here for directions, and then continue on to TheCushingsChat. Important! People who do not have Java on their browsers may use another version of the chatroom. Please be sure to continue on to TheCushingsChat. While you're in the Power Surge room, click on the black "X" at the top of the room (Not the X in the blue circle) This will put you in the area where you can see all the rooms listed. You'll see the one to the list that says TheCushingsChat. Double click on that name to get into the room. For more help in getting into the correct room, please read these instructions. If you do have menopause issues, be sure to return on Thursday nights at 9 eastern for wonderful information, guest speakers and camaraderie. I hope to see you tonight! ~~~~~~~~~~~ Cushing's Help and Support at http://www.cushings-help.com Cushing's Message Boards at http://www.cushings-support.com/cgi-bin/ib3/ikonboard.cgi Subscribe and Unsubscribe: Cushing's Newsletters and Chat Reminders http://www.cushings-help.com/aim.htm#reminder   Join us at: E-mail: CushingsSupport@aol.com Toll-Free: (877) 825-0128 On the Web: Cushing's Help Website Cushing's Help and Support Web Boards CUSH: Cushing's Understanding, Support and Help ©2000-2004 Cushing's Help and Support. All rights reserved. Privacy Policy Disclaimer