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Important! Please read the chat directions below, so you're ONLY in the Cushing's Room, not both Cushing's and Power Surge. Many people end up being in both rooms, instead of only one.
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Donald John Koziol
Tuesday, September 2, 2003
Sue and Don at the UVa Convention September 2002.
ChatiCat posted this on
the message boards:
Koziol,
Donald John
Passed away Tuesday, September 2, 2003, age 59 years. Survived by his loving
wife of 39 years, Sue, sons Jeffrey and James and daughter, Donna Sue, (9)
grandchildren, a host of relatives and friends.
Cushing’s Syndrome, while remaining unknown for many years, affected Donald's
life. During the many years Sue was afflicted with this disease he stayed by
her side, supporting her, loving her and never giving up on her as she became a
stranger to him. Once diagnosed, he continued to support her throughout her
surgery and many months of recovery. He was instrumental in the foundation of
the CUSH organization, his belief that no one should have to suffer such
insidiousness and that more should be done to create awareness of an often
misdiagnosed disease. Shortly after Sue's surgery Donald was diagnosed with
Prostate Cancer. All the while he battled his own disease, he continued to
support his wife's devotion to Cushing’s Awareness, traveling with her to form
CUSH, meet other Cushing’s patients and the UVA Pituitary Days Conference, plus
annual CUSH meeting in Virginia in 2002. While he himself was riddled with
pain, he committed himself to being by her side, meeting those afflicted by
Cushing’s. He kept up an avid interest in the message boards until the last
month of his life... He was devoted.
In lieu of flowers, Donald requested that donations be made to the
Cushing’s
Understanding Support & Help (CUSH) Organization
PO Box 24748
Lyndhurst, OH
44124
or online, by credit card, here:
I never had the opportunity of meeting Don personally but I so appreciate his
dedication to Cushing's and his faithful support to Sue.
Cathy
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| Birthdays: | Other Celebrations: |
•candacerachelle, September 11
•Laurie Hahnlan, September 14
•susancolleen, September 14
•(Shep) Cheryl, September 15
•Sprockets, September 15
•randisitter, September 16
•beverly1957, September 17
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• Jayne and Robin are expecting.
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| Upcoming Surgery: | Currently Recovering: |
• Cookie, postponed due to infection: inserting temporary catheter in her neck for dialysis to her leg
• Gus, BLA is scheduled for early September
• Stayce, Pituitary Surgery, rescheduled for October 1
• Sandie Roughley, Adrenal Surgery, not sure if it's Lap or Open yet, October 13
• Kammie, Pituitary Surgery, Nov 3, Cedars with Dr Shahinian
• Doreen, Cataract Surgery, to be rescheduled
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Pituitary:
• AllenS
• Debbs
• Lanita
• Kathie
• Jennifer (jjlr52)
• Gina
Read all about Gina's wonderful helpers »
• Kara
• Lucille
• JudyL
• D'Shawn Russell
• Gloria |
Adrenal:
•Anita (inkognita)
•Lori (summerlori)
•Cat
•LadyDi
•Duncan
• KimB
• CJ (Christine)
• SteveB
• Allie
• Sam
• Teri T
• CathyR
• bp50 (Barb Power)
• Angela Kaiser
• Melinda 2 |
Radiation:
• Dori, second gamma knife at UVA
• SandieK, gamma knife at Ohio State
• Melinda Freels, Fractionated Stereotactic Radiation
• Luisa (LSpriggs), gamma knife at UVAd |
Other Surgery:
• Ria, Removal of Thyroid due to Thyroid Cancer
• Christine, exploratory Endometriosis
• Edith, Fibroid surgery
• Katty, total abdominal hysterectomy
• Pat (pat@wtp), Toe Surgery |
Other:
• Lorrie, right ankle broken in three places, her left heel fractured, is completely immobile |
| News! |
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• There are now 1670 members on the Message Boards.
• We welcome your articles, letters to the editor, bios and Cushing's information. Submit a Story or Article to either the snailmail CUSH Newsletter or to an upcoming email newsletter at http://www.cushings-help.com/newsletter_story.htm A no-obligation free sample of the CUSH Organization Newsletter is also available from that same link.
• Coming in November, a Special Guest Chat with Dr. Ted Friedman. More info »
• More translations: On some pages now, others coming gradually: Brazilian Portuguese, Bulgarian, Chinese, Croatian, Czech, Danish, Dutch, Filipino (Tagalog), Finnish, French, German, Greek, Hungarian, Icelandic, Italian, Japanese, Korean, Latin American Spanish, Norwegian, Polish, Portuguese, Romanian, Russian, Serbian, Slovenian, Spanish, Swedish and Thai.
| Newest Bios: |
| To add or edit your bio, please click here » |
| AllenS |
Updated
Pituitary
Pituitary Surgery at OHSU, Sept 8, 2003 |
Washington State |
| Cathy Tia |
Updated
Found a pit tumor. |
New Zealand |
| Carla Constant |
Updated
Setting a date for adrenal surgery |
The Pas, Manitoba |
| Debbie Joy |
Hyperprolatinemia and a pituitary microadenoma |
Australia |
| Kathy |
No diagnosis yet |
Danvers, Massachusetts |
| Sandie Roughley |
Updated
Adrenal Surgery October 13 |
Devon, England |
| Sarah (SarahsSanity) |
Not yet diagnosed |
Los Gatos, CA |
| Todd |
Half the pituitary removed (transphenoidal) 6/11/01 |
East TN |
• If you've been diagnosed with Cushing's, please participate in the Cushing's Register » The information you provide will be used to create a register and will be shared with the medical world. It would not be used for other purposes without your expressed permission. Note: This information will not be sold or shared with other companies.Lynne Clemens, Secretary of CUSH Org is be the person responsible for the creation of this register. If you have any questions you may contact her at lynnemc@attbi.com. You do not have to be a member of CUSH to fill out this questionnaire, as long as you are a Cushing’s patient. We do not believe that the world has an accurate accounting of Cushing’s patients. The only way to authenticate accuracy is with actual numbers. Your help will be appreciated. Thank you."
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| Fundraising: |
- Burden Bears:
- Natalie has been collecting some money for CUSH.
She says: "I am making "Burden Bears" and selling them at my craft shows and I am donating $1 from each sale... ...So far I have collected about $20 for us."
Thanks to all of you for these clever Fundraising ideas.
CUSH can always use funds to help us all, by spreading the word and helping others. What can *you* do to help CUSH?
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| Upcoming Conventions, Meetings and Seminars: |
•Upcoming Pittsburgh Luncheon, Saturday, November 15th. Judy is hostess. More info here »
•CUSH is proud to announce that we are planning a Convention for October, 2003 in Portland, Oregon. More info here »
• Shauna has been busy setting this up...CUSH is proud to announce that there will be a Convention for October of 2003 in beautiful Portland, Oregon.
We have arranged to have Dr. David Cook of Oregon Health Sciences University speak to our group. Dr. Cook is an Cushing's expert and we are honored to have him speak.
We've added another speaker (thanks Cookie!), a neurosurgeon who works with Dr. Cook's patients. His name is Dr. Johnny Deleshaw, and he's the one who performed Kelly and Emilie's surgeries.
We are also arranging to have additional speakers, including (hopefully) a neuropsychologist and a gynecologist, to help us with all that goes with Cushing's Syndrome.
Our rooms are booked at the Days Inn City Center location. The cost for a single room suite is $59.00 for one or two beds with NO BREAKFAST or $69.00 for one or two beds with a Full American Breakfast. In either case, there will be an 11.5% occupancy tax. Both smoking and non-smoking are available.
The dates will be: October 16, 17 and 18th, with departure on the 19th. Our schedule will be as follows:
Thursday: General meeting of CUSH, one hour CUSH officers meeting, evening cocktail hour.
Friday: Conference with our speakers and a catered lunch, courtesy of CUSH. Dinner out that night (we'll provide selections).
Saturday: FUN!! We're looking at either a boat ride down the Columbia Gorge or possibly at train ride down the Gorge.
Sunday: Hugs, tears and goodbyes
There is a small charge (donation, tax deductible) to attend the conference, but we are sure it will be worth every cent. Many of us are putting in lots of work to make this an unforgettable, yearly event. We will invite you to tell your doctors about this - YOU NEED NOT BE A MEMBER OF CUSH TO ATTEND. We will have materials available for you to post and give your doctor to promote this event. It will be very professional and we will have some fun events planned.
We are setting a date after which attendance will be restricted. Tentatively, we are looking at until June for Conference attendance and July as the last time to book a room. All of this is subject to change, as we're still ironing out details.
Download the Hotel Reservation Information (Word File) for Portland, OR, CUSH meeting, October 2003, here »
If you must call them instead of filling out this form, the number is 503-221-1611 and for the special rates, you need to say that you're with:
Group Name: Cushing's Understanding, Support and Help Organization
For this Event: Cushing's Organizations 10.03
Dates: October 14-19, 2003
Download the Hotel Reservation Information (Word File) for Portland, OR, CUSH meeting, October 2003, here »
Purchase your tickets now. They're due by September first. You don't want to miss out! Ticket info here »
Map:
Map to the Convention Site »
Thanks to everyone - this is going to be one great conference!
•PDES Seminar on Growth Hormone Replacement, Saturday, Oct 18, Dearborn, MI. More info here »
• Friday and Saturday, April 1-3, 2004. Pituitary Days Convention for Doctors and Patients at UVa, Charlottesville, VA. More information here ». There will be many people from the message boards there. CUSH will have a meeting during this time, as well.
• Tentative Atlanta area meeting. Carol Perkins, former model - Victoria's Secret, Harper's Bazaar, Vogue, and the founder of Harry Barker in Savannah - has agreed to share her inspiring story. More information, as it becomes available, or check here »
• More upcoming local meetings are listed here »
• Sign up for notification of local meetings. You need not be a CUSH member to participate. |
| Online Chats: |
| Please join us in the Chat Room (click here, and then continue on to TheCushingsChat. See directions below.) The next scheduled chat is TONIGHT at 9 PM, Eastern, when we will discuss Cushing's, troubles with diagnosis, symptoms and much more. Important! The chat room has been updated and will look different to folks who have been around before - there are some new features, and some of the old ones have moved to a new place, so it might take a little getting used to. People who do not have Java on their browsers may use another version of the chatroom. Please be sure to continue on to TheCushingsChat. While you're in the Power Surge room, click on the black "X" at the top of the room (Not the X in the blue circle) This will put you in the area where you can see all the rooms listed. You'll see the one to the list that says TheCushingsChat. Double click on that name to get into the room. If you do have menopause issues, be sure to return on Thursday nights at 9 eastern for wonderful information, guest speakers and camaraderie.
Directions: When you enter the Chat Room (http://sites.chatspace.com:8350/):
1 Enter a nickname for yourself (it would help everyone if you use the same name you use to post...but it's not necessary). NO Password is required. Your password from the boards will not work, unless you register it after you are in the chatroom. More features are available when you are registered, but it is entirely optional. If your chosen name doesn't work, it means that someone else has registered it. Pick another name and try again. You may also choose a font size at the sign-in window, under "Options". 2 Push the "LOGIN button"
You will be in my friend's Power Surge Chat Room. 3 On the top, left side, you will see a tab that says "Rooms". Click on that and there will be a list which includes the TheCushingsChat. Click on the name to get in. I hope to see you tonight! 
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Cushing's Help and Support at http://www.cushings-help.com
Cushing's Message Boards at http://www.cushings-support.com/cgi-bin/ib3/ikonboard.cgi
Subscribe and Unsubscribe: Cushing's Newsletters and Chat Reminders http://www.cushings-help.com/aim.htm#reminder
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